MikeO Posted August 24, 2021 Report Share Posted August 24, 2021 I was going through some of the non-pharmacologic measures that can be done to help out with orthostatic hypotension and stumbled on a technique of using tilt training to build up orthostatic tolerances. Started thinking It's kinda of a coincidence that a number of years back i started (subconsciencly) leaning up against things like door jams, walls, car etc.... Not sure what dysautonomia condition this is intended to help but, seems like i have done a better job at tolerating being upright than i did years ago. Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted August 24, 2021 Report Share Posted August 24, 2021 This might be of interest https://www.dinet.org/links/usefulness-of-a-tilt-training-program-for-the-prevention-of-refractory-neurocardiogenic-syncope-in-adolescents-a-controlled-study-r245/ (sorry this link to this article referenced above no longer works) https://www.dinet.org/forums/topic/21016-taking-tilt-training-seriously-i-wasnt-who-wants-to-tilt-with-me/?tab=comments#comment-195319 Quote Link to comment Share on other sites More sharing options...
dancer65 Posted August 24, 2021 Report Share Posted August 24, 2021 My biggest crash was in 2014 , BP would run at 60/40 most of the time I felt dreadful all the time and was so dizzy I crawled around on my hands and knees ! I read about this and started at 1 minute at a time as often during as I could increasing the time as much as I could . It was tough but I believe it helped to literally get me back upright . After a while I found I could be upright as long as I was moving and not standing still . good luck ! Quote Link to comment Share on other sites More sharing options...
Pistol Posted August 24, 2021 Report Share Posted August 24, 2021 @MikeO - this certainly can help, but I believe it requires complete dedication. I t did help me. Quote Link to comment Share on other sites More sharing options...
MikeO Posted August 24, 2021 Author Report Share Posted August 24, 2021 17 minutes ago, Pistol said: @MikeO - this certainly can help, but I believe it requires complete dedication. I t did help me. Oh @Pistoland as @dancer65mentioned it does help. Just did not realize i was doing this subconsciencly. 2014 was bad for me and had numerous issues with hitting the floor. too this day i still do this. This has helped not sure what i have adjusted to but i can handle a drop in BP much better. As @dancer mentioned i do as well need to keep moving. Quote Link to comment Share on other sites More sharing options...
Pistol Posted August 25, 2021 Report Share Posted August 25, 2021 @MikeO - when I first started to pass out from POTS I noticed that I had done countermeasures for a long time subconsciously. I would always cross my legs, walk holding on to a wall and lean against a wall while standing. In retrospect I realize that the POTS symptoms had been around for a long, long time and I had compensated for it all along. Quote Link to comment Share on other sites More sharing options...
cmep37 Posted August 25, 2021 Report Share Posted August 25, 2021 I don't want to pour cold water on this theory but I tried it for a couple of months and it didn't have any effect on me. I could stand for longer propped against a wall than I could in an open space but I wasn't really able to increase the amount of time I could stand before becoming symptomatic. Some days I could do longer than others but consistent improvements - nope! I have POTS because of hEDS and I don't know if that was the reason I saw little benefit - I'm not sure that tilt training can do much for stretchy veins! What I found much more help was exercises to build leg and especially calf muscle, improving the return of blood to the upper body. I'm not saying don't try it - it won't do you any harm and from what others have said it may help you but don't get too downhearted if it doesn't work for you. Quote Link to comment Share on other sites More sharing options...
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