Fujitsu Posted July 29, 2020 Report Share Posted July 29, 2020 Anyone here taking Klonopin and if so how much/how often and is it helping? I started taking 0.5mg a day and it completely diminishes my pots symptoms. My mom has also had these symptoms most of her life and has taken Xanax as needed and has not become addicted. Also her pots symptoms disappeared after menopause, so this whole condition has a lot to do with hormones for some people. I know they say it's addictive etc, but my psychiatrist said such a low dose taken twice a day won't cause an addiction. Just wanted to hear your klonopin stories and if it's helped. I'd rather take klonopin than a ton of other meds:/ Quote Link to comment Share on other sites More sharing options...
Pistol Posted July 29, 2020 Report Share Posted July 29, 2020 @Fujitsu - my autonomic specialist, who sees dysautonomia patients from all over the world, does not commonly use Benzos. I believe they mask our symptoms and the risk of addiction is extremely high. Since they tend to make you merely "feel better" it is not afar-fetched possibility to become addicted. Please be careful!!!!!! This is taken from the following website: https://myheart.net/pots-syndrome/treatments/ Benzodiazepines Benzodiazepines are the class of drugs that include Klonopin and Xanax. They are anti anxiety agents. There is some evidence that in patients with some forms of neutrally mediated passing out spells that Klonopin may have some benefit (Kadri et al). The evidence is limited though and certainly not conclusive. Benzodiazepines should be used with extreme caution and if possible avoided, as they are highly addictive and may result in dependence. They are certainly not first line treatment for POTS patients. Quote Link to comment Share on other sites More sharing options...
Sushi Posted July 29, 2020 Report Share Posted July 29, 2020 17 hours ago, Fujitsu said: Anyone here taking Klonopin and if so how much/how often and is it helping? I started taking 0.5mg a day and it completely diminishes my pots symptoms. My mom has also had these symptoms most of her life and has taken Xanax as needed and has not become addicted. Also her pots symptoms disappeared after menopause, so this whole condition has a lot to do with hormones. I know they say it's addictive etc, but my psychiatrist said such a low dose taken twice a day won't cause an addiction. Just wanted to hear your klonopin stories and if it's helped. I'd rather take klonopin than a ton of other meds:/ A couple of things: some doctors feel that klonopin can tamp down an overactive CNS and at times when I have had severe symptoms, it did seem to do that. I’m not talking about anxiety but the symptoms of an overactive CNS that some get from Dysautonomia. That said, it is addictive even at low doses for most people. .5 mg twice a day is not a very low dose and is likely to lead to dependence/addiction, so it is good to be very cautious in weighing pros and cons. Re: menopause and Dysautonomia—passing through it did not improve my Dysautonomia at all, though it seems to for some. Quote Link to comment Share on other sites More sharing options...
Fujitsu Posted July 30, 2020 Author Report Share Posted July 30, 2020 10 hours ago, Sushi said: A couple of things: some doctors feel that klonopin can tamp down an overactive CNS and at times when I have had severe symptoms, it did seem to do that. I’m not talking about anxiety but the symptoms of an overactive CNS that some get from Dysautonomia. That said, it is addictive even at low doses for most people. .5 mg twice a day is not a very low dose and is likely to lead to dependence/addiction, so it is good to be very cautious in weighing pros and cons. Re: menopause and Dysautonomia—passing through it did not improve my Dysautonomia at all, though it seems to for some. 17 hours ago, Pistol said: @Fujitsu - my autonomic specialist, who sees dysautonomia patients from all over the world, does not commonly use Benzos. I believe they mask our symptoms and the risk of addiction is extremely high. Since they tend to make you merely "feel better" it is not afar-fetched possibility to become addicted. Please be careful!!!!!! This is taken from the following website: https://myheart.net/pots-syndrome/treatments/ Benzodiazepines Benzodiazepines are the class of drugs that include Klonopin and Xanax. They are anti anxiety agents. There is some evidence that in patients with some forms of neutrally mediated passing out spells that Klonopin may have some benefit (Kadri et al). The evidence is limited though and certainly not conclusive. Benzodiazepines should be used with extreme caution and if possible avoided, as they are highly addictive and may result in dependence. They are certainly not first line treatment for POTS patients. Thank you guys!!!! Quote Link to comment Share on other sites More sharing options...
Jessica_ Posted August 9, 2020 Report Share Posted August 9, 2020 Klonopin gave me my life back! I was diagnosed with Hyperadrenergic POTS in 2017 and I was struggling with the day to day. The overload of norepinephrine induced severe anxiety and night time attacks. I was given the klonopin about a year and a half ago and it changed my life! I barely feel any of my pots symptoms and my attacks have been gone since I started it. I don’t care if there is a stigma around taking them or not. When you have a condition like this one, if a drug helps you live your life then take it! So happy to hear it helped you too I have been on .5 mg a day and have never needed to up my dose. Quote Link to comment Share on other sites More sharing options...
Outaker Posted August 9, 2020 Report Share Posted August 9, 2020 Klonopin is what i started on and now have weened off since i figured out my disease. Quote Link to comment Share on other sites More sharing options...
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