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Posted

I get this in any "small" body part touching the mattress - ear, elbow, heel, etc. I haven’t gotten any help with it and my doctors don’t seem interested. The pain wakes me often.

 

I am wearing pillows wrapped around my feet... it helps them for now. Please update me if you get it figured out! 

Posted

I get that too.  I noticed with me that my ears got bright red as I was coming down from an hyperadrenergic episode.  I have a theory that it happens after severe vasoconstriction as the blood vessels dilate and blood flow increases.  I have seen a couple of papers suggesting Red Ear Syndrome is the same as Erythromelalgia of the ears.

Posted
16 hours ago, RecipeForDisaster said:

This really sounds like me!!! I hope there’s something that can be done about it. My ears definitely do this at night, too. 

I actually got it tonight pretty bad. It's just the weirdest thing. I first noticed it in 2008. I could go years without it happening then boom. I sorta wonder if it's a neck injury thing because shortly after it started I started getting bad neck pain and doc told me it was occipital neuralgia left side and pretty sure I have a pinched nerve in my cervical spine on the left side. 

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