jenwic Posted August 8, 2005 Report Share Posted August 8, 2005 Hi, I was wondering if some of you could help me decide if I should be tested for POTS. I have been having symptoms for 12 years. I had an abcessed gangreene appendix that was misdiagnosed and I carried it for 5 months before having exploratory surgery to see what was going on and finally having it removed. During all this I was in and out of the hospital several times and given IV antibiotics. This was when my symptoms started out of the blue. I have been to 5 cardiologists and had an echocardiogram, EKG, treadmill, 24-hour monitor, and was diagnosed with inappropriate sinus tachycardia. I accepted this diagnosis until recently. I read the description of POTS and a lot of it sounded familiar. Here are a list of my symptoms:*tachycardia, woozy and weak after meals (breakfast and lunch are worst)- sitting or lying down helps; being active or even standing makes me feel awful*tachcardia and woozy when I have fever (heart rate goes way up) and in hot tub or hot shower (ex: pulse 120-135 with fever just sitting still)*caffeine, albuterol (for asthma), alcohol, all make symptoms worse*symptoms worse after ovulation (from body temp. increase?)*when tachycardia hits I feel short of breath*viruses (nausea) and colds make symptoms worse*coughing a lot (I have asthma) makes me feel like I could pass out*after exercise my heart rate doesn't come down as fast as it should*tingling in hands occasionally*sometimes my heart rate goes up fast when I stand* heart adds a beat occasionally when I bend over*anxiety makes symptoms worseMy symptoms were worse during my three pregnancies. I have never passed out but I do have tachycardia and this weak, woozy feeling in response to the above situations.So do you all think I should be content with the IST diagnosis or should I get checked for POTS? Thanks so much for reading this and for any replies! Quote Link to comment Share on other sites More sharing options...
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