Scout Posted June 8, 2019 Report Share Posted June 8, 2019 My BP is now usually low, but can often be all over the place, and I often have spikes. At the autonomic clinic I went to at the start of the year, they said it was clear my autonomic nervous system was struggling to keep HR and BP stable, as the readings were very erratic. Today, for example, my most recent BP reading was 100/87, meaning a very narrow pulse pressure. From what I've read and been told, a pulse pressure under 30 is considered abnormal. (For anyone who isn't familiar with the term, "pulse pressure" just means the difference between systolic and diastolic. A BP of 120/80 = 40 pulse pressure.) I'm also feeling very dizzy. I'll definitely speak with my specialist again very soon, but I just wondered how common this was with fellow dysautonomia sufferers? Drinking lots of water as I know that usually helps me. Thanks for your time. Quote Link to comment Share on other sites More sharing options...
Pistol Posted June 8, 2019 Report Share Posted June 8, 2019 @Scout in my case when unstable my BP goes up and my Pulse pressure goes down, i.e. 130/105. The systolic increase is what is concerning ( it means the heart does not relax and refill the chambers with freshly oxygenated blood between beats ). My BP normally is low as well, like yours. What has helped me in the way of medication was adding a calcium channel blocker ( Diltiazem ), this helps to dilate the vessels and prevents vasoconstriction. In the end what has stopped the adrenaline spikes are weekly IV fluids - they increase the blood volume and stop the faulty ANS reaction of vasoconstriction by dumping adrenaline. Quote Link to comment Share on other sites More sharing options...
toomanyproblems Posted June 8, 2019 Report Share Posted June 8, 2019 I'd like to hear more about other's narrow pulse pressure because that's a consistent problem I note with my BP. It's not something that's discussed or seemingly recognized often in the medical community IME. I was recently at one of my dr's appointments and my BP was 100/82. I said something about the pulse pressure and the nurse acted like she had no idea what I was talking about. No one has ever addressed it with me despite consistent abnormal results. Quote Link to comment Share on other sites More sharing options...
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