Outaker Posted January 30, 2019 Report Share Posted January 30, 2019 I have these buildup surges and they cause huge moments of distress and blood pressure increases Quote Link to comment Share on other sites More sharing options...
jklass44 Posted January 30, 2019 Report Share Posted January 30, 2019 Sorry to hear that. Have you spoken to your doctor about these episodes? If you’re having so many surges it may mean you need an adjustment in medication! Best wishes. Quote Link to comment Share on other sites More sharing options...
Pistol Posted January 30, 2019 Report Share Posted January 30, 2019 I agree with @jklass44 - having surges at any frequency needs to be brought up to the physician so he can adjust the meds if needed. I used to be quite unstable like that but since having found proper treatment my surges have improved and only show up when I am in a flare ( which - thank god - is rare anymore ). Quote Link to comment Share on other sites More sharing options...
p8d Posted January 30, 2019 Report Share Posted January 30, 2019 I used to get them in the afternoons but recently it has shifted to evenings with supine hypertension. I agree discuss with your Dr about possible med changes. Quote Link to comment Share on other sites More sharing options...
Outaker Posted January 30, 2019 Author Report Share Posted January 30, 2019 Are you under control now? Quote Link to comment Share on other sites More sharing options...
df3121 Posted January 30, 2019 Report Share Posted January 30, 2019 On 1/30/2019 at 12:13 PM, Pistol said: I agree with @jklass44 - having surges at any frequency needs to be brought up to the physician so he can adjust the meds if needed. I used to be quite unstable like that but since having found proper treatment my surges have improved and only show up when I am in a flare ( which - thank god - is rare anymore ). What do you take for meds/do for treatment? Quote Link to comment Share on other sites More sharing options...
Pistol Posted January 31, 2019 Report Share Posted January 31, 2019 @df3121 - for hyperadrenergic POTS I am on Escitalopram, Carvelidol, Diltiazem, Guanfacine, Ritalin and weekly IV infusions of 1 l LR over 8 hrs ( up to 3 l over 24 hrs as needed ). Quote Link to comment Share on other sites More sharing options...
corina Posted January 31, 2019 Report Share Posted January 31, 2019 Not sure if you are on meds but I think it would be best to discuss these problems with your doctor Outaker! Hope you will find some relief soon Quote Link to comment Share on other sites More sharing options...
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