Michelle Sawicki Posted July 23, 2005 Report Share Posted July 23, 2005 Hi guys!We have a couple of volunteer opportunities for anyone interested. We are especially interested in volunteers who have the ability to stay focused and dedicated to a task.1. Find websites on POTS, NCS, PAF and/or MSA to add to the DINET website. Full text articles are preferred and information must be from reliable sources, such as physicians, hospitals, schools, etc. Google now has a search for scholarly papers at http://scholar.google.com/ which can be helpful in locating good resources.(Also, if any of you find good articles on the web we'd appreciate if you'd pass them on so we can add them to the site and share them with others.)2. Update the Support Group information listed on the DINET website. This entails emailing each support group leader and asking if their group is still in existence and if any of the information listed on the DINET website has changed, such as email addresses, meeting locations, group leaders, etc.3. Update the Physician List by making sure the physicians' contact information is still correct. This will be time consuming. The volunteer who does this will have to find each physician listed on their hospital website and/or call the physician's office and confirm that their contact information (address and phone #) are still correct. The ability to conduct yourself in a professional manner is required.If any of you are interested in the above positions please contact me (Michelle Sawicki) at: staff@dinet.org or send me a PM from the forum.THANKS!Michelle Sawicki Quote Link to comment Share on other sites More sharing options...
Michelle Sawicki Posted July 25, 2005 Author Report Share Posted July 25, 2005 Anyone else interested? Quote Link to comment Share on other sites More sharing options...
Guest Julia59 Posted July 25, 2005 Report Share Posted July 25, 2005 Michelle---i'm always happy to send any articles I can find. In fact I posted a link to an EDS website today. I hope it's not already on the site. I didn't look.In the future I will check to see if potsplace has it posted already----- before I post it.I will think things through and see if there are any other ways I can help out.Julie :0) Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted July 25, 2005 Report Share Posted July 25, 2005 I think what Michelle is asking for is someone to routinely do such searches, and send them directly to her for review. That way, she can keep the DINET site up-to-date with the newest journal findings.Nina Quote Link to comment Share on other sites More sharing options...
DancingLight Posted July 25, 2005 Report Share Posted July 25, 2005 Michelle,What is your timeline for getting the Physician's List updated??Is anyone interesting is splitting the list with me?Emily Quote Link to comment Share on other sites More sharing options...
Michelle Sawicki Posted July 25, 2005 Author Report Share Posted July 25, 2005 No timeline...just something you can work on at your leisure. It would be great to have one or more people work on it.Michelle Quote Link to comment Share on other sites More sharing options...
Guest Julia59 Posted July 26, 2005 Report Share Posted July 26, 2005 I would have no problem doing this on a routine basis. I just need to figure out how to access more articles and research. My brother in law is a Doc---maybe he can help. I will go over the the MUO library and see if they will be willing to help me out.I will do this next week after I have the minor surgery this Friday.I saved the link to my favorites Michelle.Julie :0) Quote Link to comment Share on other sites More sharing options...
nantynannie Posted July 26, 2005 Report Share Posted July 26, 2005 Hi Michelle and Emily,I could split the list with you Emily. Let me know what you are taking and I can do the rest.Ann Quote Link to comment Share on other sites More sharing options...
DancingLight Posted July 26, 2005 Report Share Posted July 26, 2005 Ann,As for the U.S. doctors, i'll start at the 'bottom' of the list and you can start at the top...how does that sound...then we can touch base as we work our way up of down as the case may be!)...i'm slow, so we won't meet in the middle for a while i am sure! there is one other person interested, so we will see what she wants to do too...i think with three people it really should be a job that seems much more doable than one person doing it all. as for the international ones...i don't know anything about making international calls, etc. can do this and can help out financially here too if need be by paying for some calls. do i have to add anything to my long distance plan? what about calling some of the countries that don't speak english? hmmm...otherwise, not a problem to call internationally, but i would like to split these up too if possible! i have unlimited long distance all day and all night on my LAND LINE so i don't mind making calls anywhere in the u.s. and helping out this way. Emily Quote Link to comment Share on other sites More sharing options...
Sunfish Posted July 26, 2005 Report Share Posted July 26, 2005 em & ann - i had already told michelle this, but since you are diving in, you can skip over vanderbilt (tennessee) & dr. khurana (maryland) as they're both good to go with current/correct info. thanks for working on this for everyone!:-)melissa Quote Link to comment Share on other sites More sharing options...
Michelle Sawicki Posted July 26, 2005 Author Report Share Posted July 26, 2005 Hi guys,It might be easier to try to locate the international docs on the Internet. Most of the time you can google their name and track them down.Michelle Quote Link to comment Share on other sites More sharing options...
nantynannie Posted July 27, 2005 Report Share Posted July 27, 2005 Emily,I like your idea of each starting at opposite ends. I'll do as you suggested and start and the top. Maybe when we get close to finishing the US list, we can figure out how to do the international. I also have unlimited long distance so that is good for both of us. Keep in touch.AnnThanks Michelle and Melissa! Quote Link to comment Share on other sites More sharing options...
DancingLight Posted July 27, 2005 Report Share Posted July 27, 2005 Ann, that sounds like a great plan to me! We'll just keep eachother posted! When we finish the U.S. we can split up the International ones! Thanks bunches for doign this with me! It really makes it seem managable this way! Emily Quote Link to comment Share on other sites More sharing options...
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