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Really thirsty!


Deb M.
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Hi Everyone,

The last few days I've felt really thirsty. It's almost as if I can't get enough to drink. I've been drinking tons of gatorade, water, and crystal light.

I have doubled my atenolol to 25 mg a day as of last week. I'm wondering if that's a side effect of the drug or a new symptom of my dysautonomia. OR am I drinking too much gatorade and eating too much salty stuff... :P

Has anyone had a problem of being more thirsty?? I don't have diabetes or anything... I've already been tested.

Thanks!

Deb

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Hi

I have aproblem with being excessivly thirsty too,

yes I do believe that it can be a symptom of Pots..

in my case I have a double whammy.. diabetes and POTS... I also have a problem with dehydration.. no matter how much I drink.. I'm still thirsty..

keep drinking the fluids... especially in this heat...

good luck

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i don't know how the increased atenolol could be causing the increased thirst for you, but if the change corresponds so directly i wouldn't dismiss the possibility. i've come to think that just about anything is possible:-)

on the other hand, i'll second the notion that i am almost constantly thirsty. even if/when i am well hydrated. i seem to do better with a mix of gatorade & water throughout the day rather than alternating &/or one or the other, but i still feel thirsty almost constantly. i was always significantly worse though in the morning & felt like i would be having to catch up all day with the fluids but have recently started DDAVP in the evening to help my body even out its' fluid balance. i was putting out significantly more urine overnight (in the morning when i cathed) than through the day which is why we decided to give this a go. i'm still thirsty but am not as bad in the AM as i used to be.

i too have wondered at times about too much fluid intake &/or too much salt. this is a possibility but for me it's probably not too likely. and in general isn't as likely as not enough. if your salt intake has increased a lot all of a sudden it seems that it could make you more thirsty, or if you're constantly snacking on salty things & this is a change for you that could be part of things. unless it's related to a med you're on, it's not likely that too many fluids would make you more thirsty, but if something is off in your body, particularly in regard to your electrolytes, it is possible. have you had your electrolytes checked recently?

good luck,

:-)melissa

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I am not taking a beta blocker, only florinef and I have days when I cannot get enough to drink too. I am not diabetic though. I always thought it was just a POTs symptom. Kind of a way for my body to warn me that I was getting dehydrated and that my bp was low. When this happens I never want soda or plain water...only gatorade or flavored water.

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I am always thirsty. I even drink water while I am sleeping at night. I have Reactive hypoglycaemia and have been told it is due to that. My Cardiologist says I must always drink allot of water due to the heart problems. Part of pots I guess. In summer my mouth can become bone dry. I just drink and drink. ;)

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For years I drank out of a good sized water bottle. FINALLY after urinating my brains out some days and losing 5 lbs and feeling dreadful by bedtime, i started reading about DDAVP. I asked my endocrinologist about it and he gave me samples. So I am obviously ones that are intermittently low on the ADH (Anti diuretic hormone)

It matters NOT how much fluids I drank or how much salt I ate, the fluids went right through me. DDAVP has been used for years in kids with bedwetting problems and is considered safe. I take once or twice a day as needed. I even use LESS CHAPSTICK while taking it so I do stay on the verge of dehydration at times with my POTS.

The test for diabetes insipidus (not sugar but another type of diabetes) is very tough and possibley risky to test for or to go thru the test. I didn't get rid of over a gallon of water a day like some people (at least not the times I had urine monitored) but I lost enough electrolytes to make myself feel rottn. So while I do not have D.I. per say, many with POTS mimic the illness and benefit greatly with DDAVP. But you have to do your homework to know about the risks/benefit ratio of the med (or any med) and have a doctor familiar with it.

In my case the samples worked and it helped immensely. I get the meds from the drug company now because it is expensive.

Hope this helps.

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I'm always thirsty and I am taking about 100-150 mg of toprol (beta blocker a day). I don't see much correlation between the beta-blockers and thirstiness though, because there are some days where I am not thirsty at all, but I'm still taking the meds. I think it's just a side affect. I do know gatorade has helped out tremendously though I am not a huge fan of it for the most part.

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P.S. I do not currently take beta blockers but before I did, when I tried them and afterwards, I STILL WAS COTTON mouth and thirsty a lot...and had chapped lips. Just wanted to clarify since I didn't answer your questions.

I take NO MED to cause dry mouth, either.

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oh i am always, always thirsty...but i am also on a zillion meds that can cause dry mouth...

and...i am one of the people like sophia who pees it all out right away, and i take DDAVP (i take more than she does though) and do pee huge amounts of fluid in a 24-hr period.

can you call the pharmacist and ask if bbs cause dry mouth? that might help you rule that in or out? make sure they look at more 'rare' side effects, since you're a potsy.

also, my new fave thing for dry mouth? something called AquaDrops. They are great! Also, all of the Biotene products for dry mouth...

emily

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Thanks everyone for your replies!

I see my doctor next week and I'll ask her if I don't get to the pharmacy before then. It could be something as simple as the air conditioning is on all the time and drying out the air... I dunno.

I just kinda freaked out because I read the write-up that comes with the medicine from the pharmacy and it said to contact your doctor immediately if you have "excessive thirst". Of course that was one of the many symptoms under that section. I'm more thirsy, but I don't think I have such a serious thirst problem that I need to contact my doc right now!! Especially since this medication is making me feel SO much better! :) I thought that would never happen.

Just to clarify...I'm not sure if I have pots...the docs only told me I have IST, but after reading all the info about pots, I wouldn't be surprised if I have it. I don't have the sudden drops in BP, but I do have trouble standing for long periods of time and feel as if I'm going to pass out...

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deb-

glad to hear that you're feeling better on the BB. i have had success on a very small dose of one as well, in combination with other meds, after years of docs being afraid to put me on one b/c of my lower bp. (fyi, my thirst issues haven't changed at all pre or post BB).

re: warnings on package inserts, i've come to realize that it seems anything & everything is on them. that's not to say that they shouldn't be paid attention to, but in terms of some minor symptoms one could go crazy...i've noticed that often the very thing one is taking a med for is also listed as a potential side effect which can be confusing to say the least!

so...i think your plan to bring up the thirst issue with your doc next week makes sense. i hope the BB continues to be a good thing for you!

:-)melissa

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Hey everyone,

I ended up calling my doctor today about my thirst and a weird episode I had last night! I fell asleep last night for probably less than an hour and then I woke up feeling like I had a really high fever. I felt really hot inside my body and really cold outside, and I had these horrible chills. My whole body felt dried out like there was no moisture left... even drinking water didn't help. It was almost as if my body couldn't sweat. It was awful! :rolleyes:

Then I went to the bathroom and I felt like I was going to pass out before I could make it back to bed. I didn't, thankfully, but I was very scared. I feel better this morning, but still feel very dried out and as if the inside of my chest is burning slightly... ugh!!

So I see my doctor in an hour and a half. I'll let you all know how it goes... I wonder if I'm dehydrated. I don't feel right today. :ph34r: And I was doing so much better...

Deb

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sorry to hear you had such a rough night & i hope your appointment went well.

hang in there & let us know how it went when you're up to it,

:-)melissa

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Deb,

By any chance, do you take Topimax? One of its side effects is hyperthermia. Another is that is can reduce or even stop the amount of your sweating. All of this would make you crave water but not get the desired effects. -Deb

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Hi,

To the other Deb :blink: : I don't take Topimax... I take meds for my asthma, protonix for possible acid reflux, and atenolol. The doctor told me today that sometimes some people get slightly thirsty from atenolol, but she's not sure that's the reason.

I saw the doctor this afternoon (she is so nice and wants to help me as much as she can). She did some quick tests for diabetes, and fortunately they came out fine. But I still have to get a fasting blood test tomorrow morning. I think she's checking for some hormone levels too.

But she wants me to see an endocrinologist, the cardiologist again, and a GI specialist. She thinks some of the burning in my cheast could be caused by stomach problems. I was on a very high dose of prednisone in Feb and May, which may have hurt my stomach.

Hopefully SOMEONE will figure out what's wrong with me!! I'm so sick of being sick! :D

I hope I can get in to see these doctors soon... I hate how they make people wait forever for an appt.

Ok, time for bed...I'm starting to whine. Sorry! ;)

Deb

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deb m-

sorry there's no answers for you in sight as of yet but glad that your doc is willing to work with you & continue in the search. hope you get the appointments & some answers soon...i know how horribly frustrating the waiting game can be.

:-)melissa

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Deb,

funny you said that about Topamax, as i just started that med on top of the others i take that cause dry mouth...oh my!!! i am soooooo much more thirsty on this one. i wake up at night and my mouth is so dry i can't swallow there's no saliva. interesting about drinking water but not getting the desired effects...

emily

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