Shane Posted June 12, 2018 Report Share Posted June 12, 2018 One thing I have noticed is that my palpitations never seem to go away 24x7 (since they started 2 months ago) even when standing/sitting/lying down (and I'd argue they are just as forceful and don't follow my heart rate whether its 65 or 90). I've read they should abate when supine. Also, I have read that is common observed difference between POTS and Pheochromocytoma (and possible other conditions). Does this make sense? Quote Link to comment Share on other sites More sharing options...
Tenacity Posted June 12, 2018 Report Share Posted June 12, 2018 I tested negative for a pheochromocytoma and have palpitations whilst lying down, despite having orthostatic tachycardia. Other than the orthostatic tachycardia, which first began alongside the rest of my symptoms, I find that there isn't much difference between symptoms I have when I'm standing up or lying down. I hope that puts you at ease. Quote Link to comment Share on other sites More sharing options...
Jessica_ Posted June 12, 2018 Report Share Posted June 12, 2018 My heart used to feel like this constantly. Even if it was 70 it was just pounding out of my chest and I hated it. It seems when I started drinking more and taking my iron and magnesium the pounding sensation has gone away for the most part. Have you had your iron and electrolytes checked? Quote Link to comment Share on other sites More sharing options...
Pistol Posted June 12, 2018 Report Share Posted June 12, 2018 @Shane - before I was on the right meds my palps were always there, regardless of position. I had tachycardia-days, bradycardia-days and the worst were brady-palpitation days. When my HR was slow the palpitations actually hurt!!! On the monitors they always were PVC's and PAC's in couplets or triplets ( 2 or 3 in a row ) and bigeminy and trigeminy ( every second or every third beat a PVC ). All of this is considered harmless but my autonomic specialist told me that they are a sign that the ANS is overly stimulated. Now I only get PVC's when I either did too much or are having a flare, so it is my "POTS detection system - factory built-in"!!! Quote Link to comment Share on other sites More sharing options...
Shannoncr Posted June 12, 2018 Report Share Posted June 12, 2018 @Shane I have palpitations constantly. They’ve gotten a little better but over 20% of my heartbeats are palps. they’re super annoying & literally take my breath away because they force me to cough involuntarily, I think it’s my body’s way of trying to reset my heart. @Pistol & I seem to have very similar heartbeats lol. My EP told me “usually, once we tell patients that PVCs are not dangerous, they go away” aka he was telling me it was all in my head. I now take metoprolol tartate 12.5 for breakthrough palps. I still think it’s important to have it checked out. My cardiologist said sometimes they do ablations, but the EP said that’s only in extreme cases & they need to be able to figure out where it’s “misfiring”. Have you had your thyroid checked recently? That can cause palpitations if it’s off even slightly. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.