lisamac Posted February 24, 2004 Report Share Posted February 24, 2004 hello everyone , my name is lisa. i have a 5 year old son who may have dysautonomia . we live in canada and have had a hard time being diagnosis with anything . the doctors just keep dealing with his symptoms. he first became ill when he was a baby . he had lots of colds and was hospitalized a few times . when he was 7 months old he started having breath-holding spells . these spells made me crazy . he would have anywhere from 1 to 10 spells a day. what was happening was he would hurt himself or be tired and would have a flight or fright type of reaction. he would not be able to catch his breath ,have what looked like a siezure,and then pass out . as a mom i knew there was something wrong with him .we went from doctor to doctor but no answers . when he was 2 years old he had some benadryl,that was the worst spell ever .he was out for almost 5 mins. after that we had a loop recorded implanted to see what his heart was doing durning these spells . his heart was pausing anywhere from 7 to 15 seconds a spell . soon after he had a pacemaker implanted . it has helped with his spells .my son has had many other problems , vision loss ,stomache pain ,headaches , low blood pressure , fast heart rate ,poor color ,chest pain ,senitive to medications tired all the time , i could go on and on with symptoms that come and go . i'm so glad to have found this fourm . we have appointment with dr.grubb in may . i sure hope he can help us . thank-you lisa Quote Link to comment Share on other sites More sharing options...
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.