HopeSprings Posted May 31, 2014 Report Share Posted May 31, 2014 Had to share! Keeping my fingers crossed we're on our way to some answers.http://www.dysautonomiainternational.org/page.php?ID=178 Quote Link to comment Share on other sites More sharing options...
sue1234 Posted May 31, 2014 Report Share Posted May 31, 2014 Thank goodness! Let the testing begin!!So, the next question is, do you have to be a patient of either of these institutions to be a part of the next phase of studying? Quote Link to comment Share on other sites More sharing options...
Chaos Posted May 31, 2014 Report Share Posted May 31, 2014 Very Cool! Even if it holds up in the bigger studies at Vanderbilt and OK, other places will need to verify the findings to have them validated so I'm glad to see that DI is keeping the fund open. Thanks to everyone who donated/will be donating!!! Quote Link to comment Share on other sites More sharing options...
Katybug Posted May 31, 2014 Report Share Posted May 31, 2014 This is very exciting! I looked just a couple of days ago and the fund was only at $38,000+. Sue, My POTS neuro said he thinks they will probably start checking blood samples they have in there storage bank for research but I told him to sign me up if they put out the word that they're looking for volunteers. If I hear anything I'll pass it on. I have to think the sample will be expanded at some point or the antibodies will be so common in POTS patients that they will make the test more widely available. Quote Link to comment Share on other sites More sharing options...
potsticker63 Posted June 2, 2014 Report Share Posted June 2, 2014 very exciting and hopefully leads to some much needed help for so many who are trying their best but still suffering Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted June 3, 2014 Author Report Share Posted June 3, 2014 They will be testing POTS patients at the DI conference in July. If you go to DI page, there is an update posted about this. Quote Link to comment Share on other sites More sharing options...
DeGenesis Posted June 4, 2014 Report Share Posted June 4, 2014 POTS/FM/CFS/ME and many interrelated conditons have been associated with autoantibodies to various receptors, including those related to the ANS and found in this study. It is an important step forward, but don't expect too much in the near future. Findings such as these have been known in CFS/ME and FM for years and there are still no large trials examining the effects of drugs used to treat autoimmune disorders in said conditions. Quote Link to comment Share on other sites More sharing options...
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