JuneFlower Posted January 31, 2014 Report Share Posted January 31, 2014 I see on many websites that POTS can be confused with Addison's Disease. It is pretty rare but I took my daughter to an Endocrinologist. That dr said her symptoms were suspicious and she should be tested for Addison's. I am wondering if this testing was included in anyone's work up for POTS? I had to ask for it.June Quote Link to comment Share on other sites More sharing options...
Trev425 Posted January 31, 2014 Report Share Posted January 31, 2014 I don't have POTS, but I did have a cortisol test. My understanding is there are different tests. Mine was a blood test and I had to take it first thing in the morning - the second the lab opened at 7AM I was there! Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted January 31, 2014 Report Share Posted January 31, 2014 Yes, my doctor also suspected Addison's and I had the test. The results were entirely normal. It is good to rule things out. Quote Link to comment Share on other sites More sharing options...
JuneFlower Posted January 31, 2014 Author Report Share Posted January 31, 2014 Thanks to both of you. This doctor wants her to have a test after fasting with an IV and I believe they inject something and then draw blood. She seems to think it is good to rule this out as well. I guess it's not uncommon. Thank you.June Quote Link to comment Share on other sites More sharing options...
kim5204 Posted January 31, 2014 Report Share Posted January 31, 2014 Yes I have been tested for addisons was negative as well. Quote Link to comment Share on other sites More sharing options...
sue1234 Posted January 31, 2014 Report Share Posted January 31, 2014 I also had the stimulation test, and it was negative. This was early on in my POTS, and all my cortisol numbers came back in the normal or low-normal range. Now, about 7 years later, my a.m. cortisol numbers continually come back in the upper high-normal range. I have no clue what is going on, except maybe having POTS puts my body in a chronic "stressed" condition, making extra cortisol secretion a "normal" thing for me. Quote Link to comment Share on other sites More sharing options...
YolaInBlue Posted February 1, 2014 Report Share Posted February 1, 2014 I was tested by my endocrynologist, because I have a problem with frequent urination and dehydration during flare ups. Basically, I can't get out of a flare without IV saline. My cortisol was on the lower side of normal. I just came back from Mayo, where they also wanted me to see their endocrynologist to clear up that I don't have Addison's. I don't. I've been also to Mayo autonomic clinic and got an explanation to those symptoms there. Quote Link to comment Share on other sites More sharing options...
AshleyPooh Posted February 1, 2014 Report Share Posted February 1, 2014 I've always wanted to get checked but can't seem to convince anyone to run the tests. It's like they don't think about a secondary cause, they just assume that my dysautonomia is the main cause of itself!It could be, but I might swing the idea of the hormone issue by the doc anyway Quote Link to comment Share on other sites More sharing options...
Relax86 Posted February 1, 2014 Report Share Posted February 1, 2014 I was negative. But I did read a ton of info about Adrenal Fatigue in which those symptoms overlapped a little with mine. I did use low dose hydrocortisone thru my worst flare and it seemed to help. I still dose it on occasions during flares. I'm about 95% better but the heart of my flare lasted a good year. There's significant reason to be cautious when learning about Adrenal Fatigue and use of cortisone -- also most Endo's completely hate the idea and believe it's a made up internet disease. But most docs's believe POTS is a made up disease for people full of anxiety so it's like picking your battles. Maybe do a little reading and see if some of the info fits you or helps you. Quote Link to comment Share on other sites More sharing options...
JuneFlower Posted February 2, 2014 Author Report Share Posted February 2, 2014 Thanks for all the replies. I really appreciate it. My daughter actually does have a lot of the same symptoms of addison's. Not adrenal fatigue per say. The endocrinologist wants to run the tests but it takes a few weeks to set up. Ugh. It's a long shot, I know. But I'd hate to find out down the road that we missed it. The dr said people can have it for years without knowing.June Quote Link to comment Share on other sites More sharing options...
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