Going To Duke For Work UP

[janineerrn]

Hi All.

Hope it was a good day for you. I am leaving Sunday to go to Duke University for a work up with a cardiologist who knows about POTS and NMH. Im making a list of what to bring and what to ask. Since I am brain damaged today i would really appreciate some help.

Name some drugs your on that help please.

Got my med records and diary of symptoms

got my med list

What questions should i ask.

It would be great to get all your input, Id really aprpreciate it.

Thanks

Janine

[calypso]

I would ask how many patients with POTS that cardiologist has seen and whether those patients have improved or gotten worse, or stayed the same. It might tell you a little about how much experience this particular doc has with POTS.

Amy

[Ernie]

Hi,

I would ask: prognosis, etiology, diagnosis and treatment plan.

Ernie

[briarrose]

I agree with Amy.

You can do a quick search here on this subject, it's come up several times before. There are way too many meds to list. I would also hit the Dinet webpages to print out some of the medications they have listed. And above the forum subjects, Nina has done a great job of posting so many links that are very beneficial.

Good luck on your appointment, can't wait to hear about it when you get back.

Steph

[Miriam Poorman-Knox]

Jan,

You are up on the cardiolical function. Perhaps asking about the brains connection in this syndrome. Dr. Low gave me Inderal, which crosses the brain

saying that it was important. I started it felt a bit better, and just had the dose increased and addes a SR so its a continual release. I almost feel human. The thyroid, yours. Perhaps, how long on a particular plan before it needs modification. Mine was 4 since I went to Mayo, and changed my Inderal dose.

And what to expect!!!!! I appreciate your posts. You are knowledgeable about cardiac issues. Your posts are helpful. Good luck. God speed Miriam

[janineerrn]

Thanks All I appreciate your advice. Getting nervous though. I hate all those tests. I know Im in for another tilt table wich makes me sick for days. The one advantage I have is that they cant blow smoke up my ***. So I will grill them for all the info they have and report back toyou all.

Thanks For The Support

Janine

[KarenLorrel]

Thanks All I appreciate your advice. Getting nervous though. I hate all those tests. I know Im in for another tilt table wich makes me sick for days. The one advantage I have is that they cant blow smoke up my ***.  So I will grill them for all the info they have and report back toyou all.

Thanks For The Support

Janine

<{POST_SNAPBACK}>

Hi Janine,

My daughter is at the School of Medicine at Duke...could you tell me the name of the doctor that understands POTS. I would appreciate knowing so she can make contact. She won't except it but she has many of the symptoms and is heading for a crash. FYI....(We donated Dr. Grubb's book to the medical library.)

I hope you find some answers and this doctor can help you.

Karen