Bigskyfam Posted November 28, 2013 Report Share Posted November 28, 2013 I am so thankful to have found you guys. Appreciate the support, understanding and hope. Happy Thanksgiving! Now let's put some salt on our potatoes! Quote Link to comment Share on other sites More sharing options...
gertie Posted November 29, 2013 Report Share Posted November 29, 2013 This is a great place to come for support & advice. Happy Thanksgiving. Quote Link to comment Share on other sites More sharing options...
KareBear Posted November 29, 2013 Report Share Posted November 29, 2013 Hope you all had a great day with family HAPPY TURKEY DAY!!!!!!! Quote Link to comment Share on other sites More sharing options...
Faintinggoat Posted November 29, 2013 Report Share Posted November 29, 2013 Awh, I am glad that you were able to find this site, and get help from it. I Hope that your Thanksgiving has been a great one! Quote Link to comment Share on other sites More sharing options...
Bigskyfam Posted November 29, 2013 Author Report Share Posted November 29, 2013 I found the small details in planning an outing like thanksgiving are huge. I didn't cook this year. Brought a bag of stuff I thought I'd need. Feeling a bit rough, had a 170 spike upon standing before dinner. Not sure what that was all about... Had salty potatoes/ham/ Gatorade and spikes are only up to 130s for now. Is this the new norm? Quote Link to comment Share on other sites More sharing options...
Katybug Posted November 29, 2013 Report Share Posted November 29, 2013 Happy Thanksgiving! Quote Link to comment Share on other sites More sharing options...
BeforeTheMorning Posted November 29, 2013 Report Share Posted November 29, 2013 I hope you had a great Thanksgiving despite not feeling good. Hope you feel a lot better soon! Quote Link to comment Share on other sites More sharing options...
Bigskyfam Posted November 29, 2013 Author Report Share Posted November 29, 2013 Overall a good one. Even despite that 4 hr window. My inlaws finally saw my 170 spike/ 150/125 Bp and syncope symptoms... Didn't pass out thank God. While a bit embarrassing it was nice in a way for them to see a window into my life. Really don't want betablockers for Christmas hope everyone had the best day possible . Quote Link to comment Share on other sites More sharing options...
looneymom Posted November 29, 2013 Report Share Posted November 29, 2013 Hang in there and just don't over do it. It's good for other family members to see what you are dealing with. One more big holiday to go, be sure to pace yourself.Rachel Quote Link to comment Share on other sites More sharing options...
Bigskyfam Posted November 29, 2013 Author Report Share Posted November 29, 2013 Thinking the holiday will be here strange how in some ways that can be easier.today I'm sitting on my sofa and my numbers are good after my morning v8. Online shopping maybe? Knotting scarves for gifts too. Any tips are appreciated with planning, organizing and coping. Much love to you guys! Quote Link to comment Share on other sites More sharing options...
angelina Posted December 3, 2013 Report Share Posted December 3, 2013 I finally was able to give my family a "teaching moment" over Thanksgiving. For the past year as I have been trying to figure out my diagnosis, my rather large, well-meaning Italian family have often tried to understand and treat my strange symptoms the best way they could...through "food therapy". If something is wrong, have some food. Unfortunately because of the MCAS, there are a lot of foods I just cannot eat anymore. I try to explain this, but somehow it gets lost in translation. So despite my intentions to cook and bring my own "safe" food, my parents over-ruled my better judgment and stated they would prepare those safe foods for me...enough for all to enjoy. I hesitated, but gave in. Half way through the meal I began to flush. I could feel my heart rate quicken. I became nauseous and dizzy at the table. I quietly excused myself and frantically started going through the cabinets for Benadryl!!! None to be found...yikes! I usually carry it in my car and have an epi pen there too, but this time I caught a ride. So in the middle of dinner, on Thanksgiving, I had to get someone to drive me to the nearest CVS (thank you for being open!!!!) and get Benadryl. My father says, "...sorry! Your mother and I didn't mean to try and kill you on Thanksgiving! Next year you can cook." Quote Link to comment Share on other sites More sharing options...
Bigskyfam Posted December 3, 2013 Author Report Share Posted December 3, 2013 Angelina! What a great and horrifying story. Thanks for sharing. It's honest, humorous( after the fact). What are your sx of mcas? Did u have testing done? Quote Link to comment Share on other sites More sharing options...
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