Racer Posted September 26, 2013 Report Share Posted September 26, 2013 I just have to share with everyone! What a difference a day can make. I finally got in contact with my doctor today, who decided my symptoms required I go to the hospital immediately. Seeing as I have a UTI they decided to do this simple test. I went and emptied my bladder, then they scanned it to see how much urine was left. I had ALOT that I could not void. They convinced me to let them insert a catheter. After getting over the intense burning... the intense abdominal pain, and so many other symptoms, I have felt for the past three months have totally went away!I must see a urologist asap to figure out how to treat this, but it is so great to finally get symptom relief. Would have been nice if they listened to me three months ago. If I hadn't got the UTI they would still be ignoring me(Edit-I changed ml to "alot" since my numbers seemed to be off) Quote Link to comment Share on other sites More sharing options...
Katybug Posted September 26, 2013 Report Share Posted September 26, 2013 I'm so glad they're paying attention to something finally! Quote Link to comment Share on other sites More sharing options...
Guest Hanice Posted September 26, 2013 Report Share Posted September 26, 2013 Thats so great man! Don't you sometimes feel like they treat patients like they're crazy? I mean come on! Why dont they just listen!? I'm so glad you've improved somewhat. ♥ Quote Link to comment Share on other sites More sharing options...
Racer Posted September 26, 2013 Author Report Share Posted September 26, 2013 ThanksThats so great man! Don't you sometimes feel like they treat patients like they're crazy? I mean come on! Why dont they just listen!? I'm so glad you've improved somewhat. ♥Yep, and now I start this all over again... called the urologist, me: "I am having problems with urinary retention and need to get a temporary catheter taken out", urology office: "if you have a catheter in and it is working, then you are not having problems with retention". Ugh Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted September 26, 2013 Report Share Posted September 26, 2013 I had this problem after childbirth--not sure if it was related to POTS. It also took a very long time for this to get diagnosed, for me. I saw a urologist who put me on a med that I don't remember now. I believe it was an antibiotic--but not really sure now. I took it for several months. Eventually the problem resolved for me. I was told that this is a problem normally seen in the elderly who are not very active. Well, I was not very active b/c I was quite sick with severe POTS... I hope the urologist will address this correctly for you and you get relief soon. I know it is very uncomfortable -- and also repeated infections can make dysautonomia symptoms even worse. Quote Link to comment Share on other sites More sharing options...
Cala Posted September 26, 2013 Report Share Posted September 26, 2013 "if you have a catheter in and it is working, then you are not having problems with retention". It makes you want to just reach out and start slapping...seriously...do these people take part in high school smart *** classes or what? OMG I think I need more meds...I'm going to need anger management from just reading the forum.Racer, I'm not sure if I need to offer you a shoulder to cry on or a punching bag. Either way this ***** big time Quote Link to comment Share on other sites More sharing options...
Guest Hanice Posted September 26, 2013 Report Share Posted September 26, 2013 "if you have a catheter in and it is working, then you are not having problems with retention". It makes you want to just reach out and start slapping...seriously...do these people take part in high school smart *** classes or what? OMG I think I need more meds...I'm going to need anger management from just reading the forum.Racer, I'm not sure if I need to offer you a shoulder to cry on or a punching bag. Either way this ***** big timeCalaYou made me lmao. Quote Link to comment Share on other sites More sharing options...
Racer Posted September 26, 2013 Author Report Share Posted September 26, 2013 Racer, I'm not sure if I need to offer you a shoulder to cry on or a punching bag. Either way this ***** big timeI am ready for the punching bag! The hospital never gave me the bag you hang on the bed, they only gave me a leg bag. As I found out last night, I could not sleep with a leg bad! My bladder would NOT drain for obvious reasons. All the air and unsterile urine rushing into my bladder cant possibly be safe? I was sure I could get a bed bag today... but nope, couldn't get in touch with anyone who was willing to help me. Looks like I wont be sleeping tonight or threw the weekend. If all else fails I guess I will be removing this myself Quote Link to comment Share on other sites More sharing options...
Guest Hanice Posted September 27, 2013 Report Share Posted September 27, 2013 Racer, I'm not sure if I need to offer you a shoulder to cry on or a punching bag. Either way this ***** big time I am ready for the punching bag! The hospital never gave me the bag you hang on the bed, they only gave me a leg bag. As I found out last night, I could not sleep with a leg bad! My bladder would NOT drain for obvious reasons. All the air and unsterile urine rushing into my bladder cant possibly be safe? I was sure I could get a bed bag today... but nope, couldn't get in touch with anyone who was willing to help me. Looks like I wont be sleeping tonight or threw the weekend. If all else fails I guess I will be removing this myselfOh no. That's just rediculous!!!! I say reak havok until you get what you need! Dont forget, YOU are paying them to give you a service! Stay safe and keep us updated. Quote Link to comment Share on other sites More sharing options...
Cala Posted September 27, 2013 Report Share Posted September 27, 2013 Good .....grrr...I hate having to censor myself. I can't remember if I even knew what part of the world your in racer but this is just WRONG!DO NOT take that thing out yourself! I'm getting heebee Jeebeeies just thinking about that to start with. It shouldn't even be an issue here. What emergency room sends you home like that?? I thought those things had a tube lock on them for the nighttime....OK..I'm getting heebees again here... Quote Link to comment Share on other sites More sharing options...
Guest Hanice Posted September 27, 2013 Report Share Posted September 27, 2013 Good .....grrr...I hate having to censor myself. I can't remember if I even knew what part of the world your in racer but this is just WRONG!DO NOT take that thing out yourself! I'm getting heebee Jeebeeies just thinking about that to start with. It shouldn't even be an issue here. What emergency room sends you home like that?? I thought those things had a tube lock on them for the nighttime....OK..I'm getting heebees again here...If you know for sure that they're going to take It out, ypu might just do a more delicate job then them. I'm not supporting or negating it but I'm just saying.... When I gave birth to my kids.... they were animals taking out the catheter. Either way.. I hope you get what you need soon. Quote Link to comment Share on other sites More sharing options...
Katybug Posted September 27, 2013 Report Share Posted September 27, 2013 Is the catheter supposed to be removed before you get to a urologist to figure out why you have the retention. My step dad had retention and they said he was lucky he finally went to the doc when he did (he was refusing for a while) because he was close to rupturing his bladder. If you can't get anywhere on your own making a urologist appointment,try calling the ER and talking to the doc that treated you there. Maybe they can have you come in for the overnight bag and also refer you to someone specific and call them for you. Quote Link to comment Share on other sites More sharing options...
Racer Posted September 27, 2013 Author Report Share Posted September 27, 2013 I am supposed to have it taken out by a urologist, but they could tell me I need to keep it in longer, I dont know. Surprisingly it is not all that bad, way better then the pain I was in. I just wish they would have given me the proper equipment to get a much needed good nights sleep. This is the first in months I have been able to lay in bed mostly pain free, yet I cant sleep with a tiny leg bag. Did I mention I have to empty this thing every hour? Just my luck to be stuck with the worlds smallest "bladder" (not as if you could fit anymore in a leg of your pants ) Quote Link to comment Share on other sites More sharing options...
Guest Hanice Posted September 27, 2013 Report Share Posted September 27, 2013 Well I hope you have a good night. Quote Link to comment Share on other sites More sharing options...
Racer Posted September 27, 2013 Author Report Share Posted September 27, 2013 Got to a urologist today, they took the cath out and gave me a med to try. Not sure if I should be happy or not. I knew the cath could only be temporary, but it alleviated my pain, urinary symptoms, and kept me dry. Now back to the start waiting to see if this med works. Quote Link to comment Share on other sites More sharing options...
Racer Posted September 27, 2013 Author Report Share Posted September 27, 2013 Forgot to mention, they are saying this is possibly "neurogenic bladder" with urinary retention and "overflow incontinence". Evidently (from what I can understand) these problems all go together under neurogenic bladder, and can cause recurrent UTI Quote Link to comment Share on other sites More sharing options...
Guest Hanice Posted September 28, 2013 Report Share Posted September 28, 2013 So its nerve damage! Is that because of dysautonomia/pots? :-0 Quote Link to comment Share on other sites More sharing options...
Racer Posted September 28, 2013 Author Report Share Posted September 28, 2013 So its nerve damage! Is that because of dysautonomia/pots? :-0I dont know, but it seems to fit with the rest of my under-active autonomic system. Quote Link to comment Share on other sites More sharing options...
Cala Posted September 28, 2013 Report Share Posted September 28, 2013 Keep an eye on your output. Hope they gave you a bottle or one of those toilet hat thingys to measure how much you pee vs how much you drink. Keep tabs on it. Don't let it get to the point it was before.If it's even hinting at getting that way, start hounding them like a kid wanting Christmas present hints LOL don't let them push you around. Quote Link to comment Share on other sites More sharing options...
Racer Posted September 28, 2013 Author Report Share Posted September 28, 2013 After taking the cath out yesterday, I was not able to go the rest of the day, at all, none. So this morning I had to go back to the hospital to get another catheter. This time the doctor recommended that I keep it in for a week. My body needs time to heal, and meds need time to build up in my system. They hooked me up with all the proper supplies this time, another course of cipro, up on zofran... everything is flowing threw me, I couldn't feel any better right now. Going to try to relax and de-stress the next couple daysThanks everyone for your helpful replies Quote Link to comment Share on other sites More sharing options...
Cala Posted September 28, 2013 Report Share Posted September 28, 2013 Kinda reminds me of that joke about all the body parts arguing over which one was the most important LOLI'm glad your feeling better and they are listening to you FINALLY! Get some much needed rest and keep us updated. Still worried about you but not as bad now. /hugs Quote Link to comment Share on other sites More sharing options...
Guest Hanice Posted September 29, 2013 Report Share Posted September 29, 2013 Oh that just stinks. How are you know btw? Quote Link to comment Share on other sites More sharing options...
Katybug Posted September 29, 2013 Report Share Posted September 29, 2013 Glad you got another cath and you're feeling better. Quote Link to comment Share on other sites More sharing options...
Dizzysillyak Posted September 29, 2013 Report Share Posted September 29, 2013 Good to hear you're feeling better. I'm always fighting utis but mine appearto be from oxalates. I've cut back on these again and am having less urinary symptoms. I just found out that I was getting stones in 2008 butsuspect the problem started sooner. Recent studies are showing oxalate problems are common for leaky gut. Fun fun fun .. just an fyi on the cipro. It's a flouroquinonlone and these can causesevere reactions in some people. I was given Levafloxin and after about4 days I noticed slight shoulder pain but just ignored it. My shoulders and knees went out in Jan 2013 and I'm still dealing with weakness and imobility. Hope you feel better soon. tc .. d Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted September 30, 2013 Report Share Posted September 30, 2013 Hope you feel better soon. From my experience with this problem it took time for my body to heal/my bladder to start to function again. I was worried I would have this problem for life!?--but it was only a few months. Let us know how you are doing. Quote Link to comment Share on other sites More sharing options...
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