Have Other People Become Hyper Allergic?

[lynnie22]

Since being diagnosed, I have become more and more allergic -- It's as if my immune system is in hyper reactive mode. This is becoming very problematic as I cannot seem to take any new medications that my body is not used to without a major allergy reaction. Even at very low doses. I have a frozen shoulder/torn rotator cuff/labral tear and cannot take ANY pain killers except advil which hardly does the trick. Even benign lidoderm patches caused this metallic taste in my throat followed by a sinus allegy for days. The pain of the shoulder with PT is a killer. I did have one cortisone shot which didn't do a thing, they want to give me another one in a different place in the shoulder. A bit wary of that, although few options.

Haven't yet been successful at taking the pots medications either, and I seem to just be more sensitive to everything, whether it's stress or standing or meds. Next week i've finally taking a much awaited colonoscopy and I'm nervous that I'm going to react to whatever they give me, let alone I'm mystified how I will get to the place without any beta blockers. My tachycardia on standing has now become much worse.

But my main concern is this allergy response. Does anyone find this to be the case for them? What do you do for it?

Thanks!!

[Kellysavedbygrace]

Yes, this has become a problem for me too. I suspect this is my Mast Cell issues because it is common to have increased sensitivities. I have been on and off of at least 20 meds and am increasingly allergic to chemicals, fragrances, etc.

I cannot take any pain med w/o a reaction- although sometimes I take them knowing the relief of pain is better than the side effects - usually difficulty breathing and severe flare.

Here are the meds I take that help w/o giving me a reaction. Each of us is different so it may need to be trial and error for you.

Mestinon

Loratidine

Famotidine

Clonazepam

Adderall

[LindaJoy]

I developed severe allergies when I was first diagnosed. I've had some allergies my entire life. I was born with Mast Cell disease, so I'm used to reacting, but not like this. I finally lost all foods, and am losing all meds, too. I am hyper reactive to many things I never used to be. I don't think it's the mast cell disease, either. I think it's my ANS system on hyper drive. I'm sorry you're going through this, too. I, too, cannot take any pain meds. The scary one is that I cannot take any antibiotics, either.

[Katybug]

Yes. I have severe and worsening classical allergies and mcas both. It's lovely! I'm on allergy shots, H1 and H2 antihistamines, and Now Xolair shots which is a biologic that suppresses IgE. I am still just as reactive and have been developing more and more reactions. I even get a rash from the water in the shower hitting me (hot or cold, products or no products) . I'm allergic to all makeup now...even pure mineral makeup (the expensive version that truly has no fillers) . It causes blisters around my eyes. That has a name, "ocular erythmatous dermatitis"....very official way of saying blisters around my eyes! Lol! We're hoping the Xolair helps gain control of this. I've only had one shot and it could take several months before we see any improvement. Oh yeah, more and more food triggers too....pineapple is the latest one.

[songcanary]

I had a colonoscopy recently and they specifically said to stay on heart meds, just hold off on everything else. So maybe double check about that?

And yes, I have multiple food and med allergies, too. I do tolerate fludrocortisone well, and also cipro and amoxicillin. But it's a short list. I know what you mean.

[gertie]

When Dysautonomia started so did allergies. Over the years I have become allergic to everything. I still have a few

foods that I can tolerate altho I do have some negative reactions to them but not life threatening so far. I have 2 meds I can take for seizures & migraines. I have reaction to all supplements. I have MCS & feel I am allergic to the world. Trying to avoid things has become a way of life.

[lynnie22]

Hi Everyone,

What is this hyper allergic state that just gets worse about?

LindaJoy, I also have become allergic to antibiotics and right now I have bronchitis, have no idea what the doc is going to do. He is not at all POTS savvy, never heard of it till me.

SongCanary, for the colonoscopy, they said maybe I should hold off with my inderol until after the colonoscopy since it will lower my bp. Please explain how taking it worked for you, and why. I do know that the anesthesia causes my heart to race even more when I wake up.

Katy, what a list! Sorry about this hope the Xolair works. I am confused as to why this is happening -- is it like an autoimmune overreaction to everything?

I am hoping to find an antibiotic that I can take (doubtful) or something that can be given for the allergy, and hope the colonoscopy sedative is something I do not react to.

Anyway, thanks for responding. Overwhelming. Good look to us all.

[Katybug]

Lynnie,

It is very confusing. My immunologist and I do both think that there is an autoimmune component to what's going on but he and other specialists have run every test under the sun for autoimmune diseases and nothing shows up in the bloodwork. He actually sent me to a specific rheumy hoping that they would treat me with something like methotrexate as that doc is known to be willing to experiment a bit but no dice! The antibiotic games are always difficult. My PCP told me when I was in my teens that I should never travel outside the US, Canada, or Europe because I have so many antibiotic allergies I likely wouldn't be able to get proper medical treatment in most other places. I'm sure there are a few more safe places these days...but you get the point. I just cross my fingers each time I try a new Med and keep my epi-pen close. I've never actually had my throat close but the immunologist gave me the script for the epi-pen just in case and because my reactions seem to be getting worse with more involvement of my chest feeling tight. I wish I had some words of wisdom but I don't ....only a gentle hug for you that your not alone in this.

[songcanary]

Lynnie,

I actually don't take heart meds. My general instruction sheet said to continue them. So I was just passing along the information that I was given.

I'm going through a major hives flare right now and I don't know what is causing them. I HATE allergies grrrrr...