bebe127 Posted April 17, 2013 Report Share Posted April 17, 2013 Hope everyone is having as symptom free day as possible.Just wondering if anyone here has Meniere's Disease/Syndrome? I've always had tinnitus in both ears for as long as I can remember, however since being dx with POTS and/or being on meds. my tinnitus is worse, especially at night. It is so hard to fall asleep with this constant ringing. I know that at night it can seem to get worse because all is quiet in the house, however the ringing really seems to be much louder in the evenings. I've also experienced, what I consider to be some hearing loss although I've never been tested before. All I know is when I sit down to watch a movie with the family, the kids always shout out, "did anyone remember to put on the closed caption for the hearing impaired!?" Yes, I now have to put on subtitles anytime I watch the telly or my Nook, if not everyone gets annoyed with my constant, "Huh?" "What did she say?" "Rewind that, I didn't catch what they said." I've even taken to reading lips at times (which can be quite awkward depending on with whom I'm speaking) because it is hard to hear what people are saying to me, especially if they are not looking right at me. I have to constantly tell my kids when they are talking to me that they need to look directly at me. Of course, they think it is hilarious when they look at me and cover their lips while talking so that I can't read their lips! Kids!! Can't live with 'em, can't live without 'em I've briefly read up on Meniere's on Mayo.com and they talk about having episodes of vertigo for 20 minutes or more. A number of years ago, I had vertigo really bad. Even if I lay on the floor, I would feel as though I was going to fall off, it was terrible. I was put on Antivert for a bit and it seemed to go away. I have never had it that bad since. Even now though, I get episodes of dizzyness, the only way I can describe it is that my head feels like a compass, you know the type where the ball floats around, if that makes any sense. I experience this daily, but it only lasts seconds. It's kina like, "whoa!" and then it goes away. I also have pressure in my right ear whenever I get a migraine, but it's not there all the time. And I always have crust in my ear, like it drains at night or something. Years ago, the dr. suspected an ear infection or virus. I also went to a Neuro and had an MRI done. He said everything looked fine. I've also experienced migraine type headaches for over a decade.This tinnitus is enough to make a sane person crazy, as if I don't already have enough with everything else.Just wondering if this sounds like Meniere's to anyone and if so, what do I need to ask/tell my dr. What types of tests are done or have any of you had testing for this?Thanks in advance Bebe Quote Link to comment Share on other sites More sharing options...
Hope Posted April 17, 2013 Report Share Posted April 17, 2013 Yes, I have Meniere's also. I was diagnosed in the 90's after a severe bout of vertigo. My ENT at that time put me on a very low salt and low sugar diet. About 4 years ago they did a test, I believe it was an ENG. They have you watch movement through some type of equipment and they look at your eye movement patterns. Then they lay you back and blow air into your ears. The first part just made me nauseous, they air in the ears put me into vertigo and that is what they are trying to achieve. Now that I have POTS it's hard to find the balance with the amount of salt I need to keep my low blood pressure up and to keep my head from spinning! More recently, I have seen a Neurologist for my POTS and Meniere's. He did a MRI to rule out a tumor, etc... So I have the BPP type of Vertigo. I get the ringing. It does get worse at night, but my house is so noisy 24/7 that I don't hear it long before I sleep I also get that "fullness" feeling they talk about in my left ear. My triggers are, allergies, salt, sugar, stress, and hormones. I find it difficult to drive very far or often between my POTS and Meniere's, and when I do I try to stay on the back roads as the intersections and busy traffic throw off my vision and balance. My ENT said that "Old Viruses" usually cause the damage. Probably the same old viruses that cause my CFS and POTS. Quote Link to comment Share on other sites More sharing options...
bebe127 Posted April 17, 2013 Author Report Share Posted April 17, 2013 Thanks Hope I've never been dx but I get frequent bouts of dizzyness/vertigo that only last seconds, plus I feel like I have some hearing loss. Oh well, just one more thing to mention to the dr. at my next visit... Quote Link to comment Share on other sites More sharing options...
Hope Posted April 17, 2013 Report Share Posted April 17, 2013 You can get hearing loss from Meniere's. I have some, but not bad. What else helps with the dizziness and the draining is the ear exercises that both the ENT gave me and my Neurologist. Ask your doctor about those as I obviously cannot give medical advice here so I won't go into how to do them. I was also given some specific vitamins that I used to take that promote blood flow in the ear and those did also seem offer some relief, but not enough relief that I would keep taking them. I wish you well! Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted April 18, 2013 Report Share Posted April 18, 2013 I have tons of ear problems - tinnitus, pressure, cloggy feeling, hearing loss, what appears to be drainage, but they never see anything in there. I had a borderline positive ENG and was told I had eustachian tube dysfunction and "borderline" menieres or some variant of menieres, another Dr. said it was hydrops. I've never had spinning vertigo though so I don't know if that's right. One thing that helped a little was steroid injections into my inner ear, but that was kind of scary and it didn't help enough to be a long term option. Ugh, there are too many diseases they can't seem to do anything about! Maybe try a neuro-otologist - they should know what testing to do. Quote Link to comment Share on other sites More sharing options...
Paul1234 Posted April 11, 2015 Report Share Posted April 11, 2015 Sorry to wake up an old thread but I am investigating whether I have POTS and I already have a diagnosis of meniere's disease, for 6 years now.I've always felt that diagnosis could be incorrect due to inconsistencies with the way people describe menieres.Then today I found this which associates the two :http://informahealthcare.com/doi/abs/10.3109/000164891091280491991 lol !! Its such a shame that all this research goes on and noone ever remembers it. Quote Link to comment Share on other sites More sharing options...
corina Posted April 11, 2015 Report Share Posted April 11, 2015 I hear you Paul! Good find! Quote Link to comment Share on other sites More sharing options...
Bigskyfam Posted April 12, 2015 Report Share Posted April 12, 2015 My friend has both pots and menieres. Talk about balance and struggle. She has to watch her sodium intake for it makes the vertigo worse Quote Link to comment Share on other sites More sharing options...
Paul1234 Posted April 12, 2015 Report Share Posted April 12, 2015 I think its a chicken and egg problem, which came first ? I had tinnitus as a teenager and I had postural fainting as a teenager. That was a really long time ago ! I didn't have to look far on pubmed to find associations:-------------------Autonomic nervous function in patients with Meniere's disease evaluated by power spectral analysis of heart rate variability.http://www.ncbi.nlm.nih.gov/pubmed/10530737These findings lead us to the conclusion that AND relates to vertigo in MD as a predisposing factor. However, the question of whether AND relates as a trigger or as a consequence of vertigo in MD has not been adequately solved in this study. We will make further studies on circadian variation of autonomic nervous function.----------------Autonomic dysfunction on the affected side in Meniere's disease.http://www.ncbi.nlm.nih.gov/pubmed/6996422Hence it can be concluded that the cause of Meniere's disease is related to the existence of autonomic dysfunction on the affected side.I won't bother posting more but google away here: https://www.google.co.uk/search?q=menieres+autonomicThat short 5 minute search is a wake up call for me, that autonomic issues could stem from menieres, or meniere's could have stemmed from autonomic issues.Even if the former is true, I'm glad I'm here because treating the autonomic issues is what I need, and not one doctor or ENT specialist mentioned to me that these issues might pop up. I'm sure they read a 1970's text book in college and then think that topic is finished and off down the pub they go ! Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted April 14, 2015 Report Share Posted April 14, 2015 Hi folks,I happened to stumble upon this article below while looking up some info on my new medication - Meclizine - and i remembered this post. I don't have Meniere's Disease, this medicine was Rx'ed for me for Vertigo Induced Nausea during migraines. (Works SO unbelievably well for me btw!)http://www.webmd.com/brain/antihistamines-for-vertigo (view why it is used section)http://american-hearing.org/disorders/menieres-disease/Has anyone had success with antihistamines for their Meniere's disease? I fortunately do not suffer from it but it sounds terrible. Sorry to those who go through this on a daily basis...Sarah Quote Link to comment Share on other sites More sharing options...
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