Mytwogirlsrox Posted March 20, 2013 Report Share Posted March 20, 2013 Last year this time I was diagnosed with Pots and NCS and now, I'm going down the breast cancer road... I'm 28! Seems unreal that I could have two rare diagnoses right? Quote Link to comment Share on other sites More sharing options...
arizona girl Posted March 20, 2013 Report Share Posted March 20, 2013 I'm so sorry to hear this. Is it for sure?Different kinds of cancer can be an underlying cause for autonomic dysfunction. I was screened for small cell cancers.Let us know how it goes! My friend who is a heart research nurse got it at age 40. Had the mastectomy, chemo and radiation. She is a little over a year post treatment and had a clear pet scan. She was stage 3 and has done very well and will consider reconstruction soon. Outcomes are really improving. Though treatment is tough to go through, it can be done successfully.Take care. Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted March 20, 2013 Report Share Posted March 20, 2013 What's going on? Hope everything will be ok. Quote Link to comment Share on other sites More sharing options...
Kellysavedbygrace Posted March 20, 2013 Report Share Posted March 20, 2013 I am so sorry to hear. It doesn't seem right that you should now have to deal with Breast cancer but I imagine your experience w Dysautonomia will help you so much in navigating this road. Do you know what stage? As AG said most treatment outcomes are hard, but successful. I will pray for God's comfort and peace upon you. Please keep us up to date on your progress. Quote Link to comment Share on other sites More sharing options...
kitt Posted March 20, 2013 Report Share Posted March 20, 2013 . Quote Link to comment Share on other sites More sharing options...
Mytwogirlsrox Posted March 20, 2013 Author Report Share Posted March 20, 2013 Thanks everyone! Im not diagnosed, just being investigated. I have abnormal glandular tissue and an abnormal scan... So?I just can't imagine 2 really rare diagnoses right? Seems too bizarre.. Maybe not? Time will tellThanks for all the encouraging words Quote Link to comment Share on other sites More sharing options...
Mytwogirlsrox Posted March 20, 2013 Author Report Share Posted March 20, 2013 Eek I didn't realize I made it sound like I've been diagnosed. Sorry, I meant down the road, like to a diagnosis.. Not there yet though Quote Link to comment Share on other sites More sharing options...
AllAboutPeace Posted March 20, 2013 Report Share Posted March 20, 2013 Oh, whew! Hopefully everything will be fine - the extra thoughts and prayers wont hurt I'm going through the same investigations. I had felt a lump before Pots but didn't pay much attention. When I was diagnosed with Pots, they investigated and biopsied the lump. While doing the biopsy they accidentally found a second lump - radiologist started doing the biopsy of that lump when I noticed "hey, your in the wrong spot" . Keep in mind that I had a mammo and an ultrasound that both missed the second lump.That biopsy, a year ago, came back with good news (thankfully . So I've been doing follow up testing every six months and recently had another mammo and ultrasound. This time, just like the last, the mammo showed NO trace of either lump, but they are still there...kinda scary when they already know exactly where they are! So now the surgeon wants to biopsy the second lump and is sending me for a breast MRI. He just wants to be sure.Anyway, I'll be thinking of you and hope everything goes well. Keep us posted! Quote Link to comment Share on other sites More sharing options...
Canadiangirl73 Posted March 20, 2013 Report Share Posted March 20, 2013 What are the odds is right? I can't believe you posted this as I have lumps in my left breast for which I will be getting an ultrasound tomorrow afternoon. I totally understand and can relate. We can just hope for the best!!! Keeping my fingers crossed. Quote Link to comment Share on other sites More sharing options...
azmusiclover Posted March 20, 2013 Report Share Posted March 20, 2013 I've had two different lumps evaluated, one in my late 20s and one in my early 30s. It was scary and definitely a nerve wracking experience. Thankfully, mine were ok and it turns out I just have dense, fibrocystsic breast tissue. I will hope and pray that your results are benign. It is scary and I am sorry that you are going through it. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.