Hoshistorm Posted February 21, 2013 Report Share Posted February 21, 2013 Last night I went to Disney on Ice with a friend. It was fantastic! I got home about 9:15/9:30, took a shower, and took my meds by 10 (my usual time). My meds include two types of sleeping pills. Since being on them I have never had the problem of insomnia. However, last night I was still wide awake at 4 AM. When I finally did fall asleep it was really restless.Today I feel very achy, tired, weak, shaky, nauseous, and overall very symptomatic. Does anyone else have the problem of not being able to do things later in the evening?Thank you! Quote Link to comment Share on other sites More sharing options...
Gerrik1 Posted February 21, 2013 Report Share Posted February 21, 2013 Untill recently I would volunteer everu Sat. night at my local Hospital ER waiting room from 5pm-9pm by the time I get home settle down take meds ectra. I am unable to sleep and more symptomatic on Sunday. I am now in a active POTS relapes and all my symptoms are bad and I am not volunteering at all. Quote Link to comment Share on other sites More sharing options...
Hoshistorm Posted February 22, 2013 Author Report Share Posted February 22, 2013 I'm sorry to hear that Gerri. Thank you for sharing though.Chiara Quote Link to comment Share on other sites More sharing options...
Batik Posted February 22, 2013 Report Share Posted February 22, 2013 For me it's more about light exposure. I had Delayed Sleep Phase Syndrome for years, until I took up darkness therapy, which involves filtering out the wavelength of light (465nm, blue) which suppresses melatonin production and thus keeps you awake. I uses to be most alert in the evenings, and thus, ore likely to do activities, but that pattern's changed now, and I go for gentler things that allow me to wind down. Watch out for computer and TV screens. They emit an awful lot of blue light, and it's one reason why they tend to keep you awake.And yes, if I have a bad night's sleep I feel like **** the next day. Muscle pain, headache, dizziness, and generally feeling like a dead rat. Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted February 24, 2013 Report Share Posted February 24, 2013 I used to be like this but now im the opposite Quote Link to comment Share on other sites More sharing options...
bizbiz Posted February 24, 2013 Report Share Posted February 24, 2013 If I do anything in the evening, I am usually exhausted and sleep deeply - better than what I normally do. However I pay for it with super bad brain fog the next day.Funny thing is - when I'm not in a flare, I usually have the same problem you describe. Quote Link to comment Share on other sites More sharing options...
E Soskis Posted February 24, 2013 Report Share Posted February 24, 2013 My body is wired to wake up between 5-6am - no matter when I go to bed - so, if I stay up too late, then I have a sleep deficit and suffer all the next day from it - it can even bring on a flare that takes days from which to recover - I dislike being such a creature of habit but, it is out of necessity...... Quote Link to comment Share on other sites More sharing options...
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