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SeattleRain

Anyone Here Use Rogaine/minoxidil?

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Has anyone here used this for hair loss? I had mild hair loss since 2010 but when my POTS onset came it became accelerated and is noticeable enough to wear I want to start treating it now. I'm using Norizal shampoo along with a HairMax lazer comb but I'm not sure how well they're going to work. I know quite a few people who use minoxidil based products and it works really well for them.

I avoid chemicals like the plague but for vanity purposes I think I might have to be a little bit of a hypocrite. I am worried how it might effect my POTS symptoms, though. So, has anyone here used this? Had a bad reaction to it?

Thank you

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Yes, and as a woman it is very hard to lose your hair. I have alopecia - which is autoimmune related. My doctor that I saw - said to NOT use the liquid but only the foam version of it. I had used the liquid and lost more hair. He said that there is something in the liquid that some react to and that is the result. I went through the laser cap treatment and actually went to the doctors office and sat under their machine to try to keep my hair. None of it worked. I had to have kenalog injections into the area that my hair came out in clumps to stop the autoimmune attack. In that spot, my hair did come back (but, not all of it) and it came back in the most pretty shade of silver. You see I have vitiligo too - where I'm losing my skin pigment color and that goes for the pigment in your hair. (This is also autoimmune related.) So, to answer your question ---if you want to try Rogaine - per my doctor's recommendation, only get the foam version. Some do find the laser comb or cap to help ---It didn't work for me. I'm hoping that my hair will get better with my new thing that I'm doing with diet. The doc. seems to think my immune system will improve and so things affected by it - should improve also. Time will tell.

Issie

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Thanks for the response, Issie. Where did you go to get tested for alopecia? Is that a visual diagnosis or do they do a biopsy of your scalp or what?


Thank you

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I went to a dermatologist at Mayo, AZ. He is one of the top doc's there and he visually DX'd it. But, if I had not responded to the Kenalog - he said he would need to do a biopsy. Thankfully, it worked - somewhat.

Issie

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Im a bald-headed wonder - completely shaven now days. Did experiement with a number of treatments early on to try and treat it. Develop POTS not long after and sometimes wondered LOL. Lots of bald guys with POTS too by the way for some reason - two blokes on Dys connection and David Metz.

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I am going bald. I have been using rogaine for at least a year. I think it worsens my POTS. It can lower BP. 

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I have had autoimmune alopecia universalsis since I was 12 , I have taken autoimmune suppressants and had numerous treatments none which had any lasting or promising effect,  I gave up all treatments at age 21 and I just wear wigs and headcovers. Minoxidil did nothing for me. Has it helped Green ?

On hairloss forums I have been in touch with four women who have POTS. Going bald is not easy to come to terms with whether your male or female but hair replacement solutions are pretty good these days and at least they don't have side effects!

 

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