Darlene Posted December 28, 2012 Report Share Posted December 28, 2012 i seen my rheumatologist about 2 weeks ago, he ordered tons of blood work. He must had sent the results to my family dr. because she called this morning wanting to see me. does this mean something is wrong. usually when my labs come back normal i dont hear from them. Quote Link to comment Share on other sites More sharing options...
sue1234 Posted December 28, 2012 Report Share Posted December 28, 2012 I hope it means there is an ANSWER! I'm sending positive thoughts your way, and please let us know what you find out! Quote Link to comment Share on other sites More sharing options...
misstraci Posted December 28, 2012 Report Share Posted December 28, 2012 Yes, usually if everything was normal they would tell you that, Hopefully, like Sue says, you will get an answer!!! Doesn't necessarily mean something bad, but something. That is what I wish so bad for!!! Good luck, let us know. Quote Link to comment Share on other sites More sharing options...
Darlene Posted December 29, 2012 Author Report Share Posted December 29, 2012 the last time i went to the rhuematologist he checked me for lupus and stuff like that. my ANA was positive and my vitamin d was low. well, i have taken 50,000 IUs of vitamin d once a week for 6 months now, and levels still haven't came up. i was telling my cousin who is a dr. how i sick i had been, and how much pain i had been in... and how i think there is a cause of my dysautonomia that the dr.'s are not are not finding it. i told him i didnt feel like i was getting anywhere with my family dr. or dr. grubb. he said go back to your rheumatologist and see if he will run more tests, thyroid and stuff. i had tons of blood work drawn. the results came back, and my rheumatologist must had faxed the labs to my family dr, cause my family dr called and said she wanted to see me. i am so tired of dr.'s like my family dr. and grubb prescribing me meds to cover up the symptoms instead of do testing to find the cause. if they can't help me, then send me to someone who can like cleveland clinic. i keep wondering why my ana is always positive, makes me think whatever is wrong with me is autoimmune. i have brain lesion too, so i have wondered if whatever is wrong with me has caused that too. i ve been trying to put the pieces together for 7 years now. Quote Link to comment Share on other sites More sharing options...
Darlene Posted January 6, 2013 Author Report Share Posted January 6, 2013 not sure why the dr. called me in. she didnt tell me anything i didnt already know. that my vitamin d level was still low and my ANA is still positive. i m always in pain, and a dr. told me dysautonomia alone wouldnt cause all that pain. i think there is something the dr. is missing. Quote Link to comment Share on other sites More sharing options...
corina Posted January 7, 2013 Report Share Posted January 7, 2013 I'm sorry about that darlene, I hoped your doc would come up with some answers for you. Quote Link to comment Share on other sites More sharing options...
angelloz Posted January 7, 2013 Report Share Posted January 7, 2013 So you don't feel alone...I have pain daily also. Back pain I can stand. The worst pain is my skull gets so painful that laying on a pillow hurts. I have been told I have MCAD so I am trying things for that too. No luck yet. I have been to the Cleveland Clinic , that is where I found out I was hypovolemic,,,but was just prescribed the usual. Florinef and midrodrin. ( spelling ) Don't ever give up...between all of us maybe we will figure something out. I will post anything that helps me.Angelloz Quote Link to comment Share on other sites More sharing options...
RichGotsPots Posted January 13, 2013 Report Share Posted January 13, 2013 I hope he does biopsies and not just bloodwork Quote Link to comment Share on other sites More sharing options...
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