Rachel Posted December 13, 2012 Report Share Posted December 13, 2012 This is an interesting article published by Mayo Clinic this month. They have created a new scoring system to assess autonomic dysfunction. You can find the article here: COMPASS 31: A Refined and Abbreviated Composite Autonomic Symptom Score. I am linking to the abstract, but you can click on the tabs to view the full text or the PDF version. Quote Link to comment Share on other sites More sharing options...
Chaos Posted December 13, 2012 Report Share Posted December 13, 2012 Thanks for posting. Interesting to look thru. Interesting that they eliminated sleep as a category given how many of us have a major issue with that particular topic. Quote Link to comment Share on other sites More sharing options...
jenniferlynne76 Posted December 13, 2012 Report Share Posted December 13, 2012 Chaos, what am I missing? I see sleep on the list, but didn't notice that it had been eliminated. (Heavens I hope not, knowing what we suffer through!)I'd love to see the full score sheet. It would be interesting to walk through it and score ourselves... Quote Link to comment Share on other sites More sharing options...
peregrine Posted December 14, 2012 Report Share Posted December 14, 2012 Take a look at Supplemental Online Material (appendices 1-3) at the bottom of the page - those are the score sheets, I think. Quote Link to comment Share on other sites More sharing options...
jenniferlynne76 Posted December 14, 2012 Report Share Posted December 14, 2012 Good call, Peregrine! Thanks so much for that! :-) Quote Link to comment Share on other sites More sharing options...
khaarina Posted December 14, 2012 Report Share Posted December 14, 2012 Yep, and you can compare your scores to table 3. Thanks for the post, this is great! Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted December 14, 2012 Report Share Posted December 14, 2012 I was wondering what the specific questions were too. Thanks for pointing that out Peregrine! Quote Link to comment Share on other sites More sharing options...
peregrine Posted December 14, 2012 Report Share Posted December 14, 2012 Worth mentioning - looking through the paper (which I still haven't finished reading), the original ASP (Autonomic Symptom Profile, Appendix 1 - the huge one) contains stuff on sleep. The COMPASS31 (the new one, Appendix 2) just contains questions on the following:- Orthostatic intolerance (questions 1-4)- Vasomotor (q5-7)- Secretomotor (q8-11)- Gastrointestinal (q12-23)- Bladder (q24-26)- Pupilomotor (q27-31)Essentially, as far as I can tell, this is the shorter screening item - I imagine they might administer this, see if the responses are abnormal, and then begin diving into all the stuff in the ASP (which includes these things but in more detail, family history, severity/duration of symptoms, color changes in the body, sweating, some questions for guys, sleep issues, alcohol/drug use, a question about concentration, and then a request for any other info you (the patient) think is pertinent). I do regret them removing the questions on sleep, sweating, and brain fog from the COMPASS31, but I imagine most doctors would hopefully expand on those if your shorter questionnaire is abnormalWhen I saw my ANS neurologist for the first time, she said up front that she might ask me some questions that seemed to make no sense/seemed unconnected - many of which are things on the full ASP. Folks without thorough doctors might benefit from looking at the questionnaires to see if anything "that's always been there" or "is my personal normal" is something of note (though of course one doesn't want one's doctor to think one is self-diagnosing!). Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted December 14, 2012 Report Share Posted December 14, 2012 Ha, I didn't notice the old one was appendix 1 and the new one was appendix 2. Thanks again, Peregrine. I was surprised to see the questions about trouble focusing eyes and light sensitivity. Sensitivity to light have been a problem and trouble focusing my eyes has been one of my biggest struggles. Glad this was included. Quote Link to comment Share on other sites More sharing options...
Chaos Posted December 14, 2012 Report Share Posted December 14, 2012 From reading the paper, it sounded like the idea was that the scoring on the original ASP was so complex (requiring computer programs etc), in addition to other issues with it, that they were reluctant to give it to other facilities to use when other facilities asked for it. This it seems is a simplified version that they came up with and are trying to "validate" for "reliability" so that it can be used at multiple facilities/providers' offices etc. They go into the reasons why they opted to remove the areas they did in the shorter version. Just seems like sleep is one that I personally went "oh no!" when I read it. Quote Link to comment Share on other sites More sharing options...
Kellysavedbygrace Posted December 15, 2012 Report Share Posted December 15, 2012 This is fabulous! I'm thrilled to see this. If accepted well it could really help in assessing and diagnosing Dysautonomia in general practice. Thanks Rachel for sharing! Quote Link to comment Share on other sites More sharing options...
kitt Posted December 15, 2012 Report Share Posted December 15, 2012 Rachel, Fantastik find, so much data here! Thanks for sharing.For those of us with cognitive issues, (me!), here's the link to the full paper.http://www.mayoclinicproceedings.org/article/S0025-6196(12)01038-5/fulltext Quote Link to comment Share on other sites More sharing options...
kitt Posted December 15, 2012 Report Share Posted December 15, 2012 Okay, the link isn't working.Please go to Rachel's original post and link. Open it, and directly below the name of the article, you'll see the word 'abstract' highlighted in yellow. Directly to the right and next to abstract is a tab that says 'full text'.Click on 'full text' and read the whole article.Great find Rachel. Quote Link to comment Share on other sites More sharing options...
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