abbyw Posted November 12, 2012 Report Share Posted November 12, 2012 Hi,So winter has just hit where I live and it has happened twice in the last 3 days, that when I go out into the cold, my hands get very itchy. It is an extremely uncomfortable itchy too. In a few places, it almost looks like a red blotch with a white center. Almost like hives, but it is not clear. (It is normal for hands to get red when they are cold, but I have never had the itching before. ) Does this have something to do with the POTS? If so, does it help give me a clue as to the source of the POTs - like is it autoimmune or something, or is it just another symptom?Thanks!Abby Quote Link to comment Share on other sites More sharing options...
E Soskis Posted November 12, 2012 Report Share Posted November 12, 2012 I have 2 thoughts: 1. Sometimes, the cold will cause a release of histamine which will stimulate the itching - usually to whatever part is exposed to the cold - 2. I have raynaud's from my autoimmune dysautonomia - when my hands are exposed to the cold, some of my fingers will turn bright red then turn a blanched white - losing all circulation in them - it does not necessarily itch but, it feels funny - this year, I've had it in my toes as well..... Quote Link to comment Share on other sites More sharing options...
sue1234 Posted November 12, 2012 Report Share Posted November 12, 2012 I have that when I get hot. I also get that when I've been standing longer than my time limit(usually 10 minutes). My whole upper body begins itching. Quote Link to comment Share on other sites More sharing options...
peregrine Posted November 13, 2012 Report Share Posted November 13, 2012 Itching is my most reliable indicator of blood pooling, but otherwise I don't tend to itch. I have some probable autonomic neuropathy (QSART but no biopsy), which might lead to the sensation; otherwise, not sure. Do you pool when it's cold? Quote Link to comment Share on other sites More sharing options...
abbyw Posted November 13, 2012 Author Report Share Posted November 13, 2012 Never noticed pooling anywhere before. This was while I was outside, my hands and toes started to itch. It stayed that way for about a half an hour or so after I came inside. Quote Link to comment Share on other sites More sharing options...
k&ajsmom Posted November 16, 2012 Report Share Posted November 16, 2012 Hi abbyw,Im new here and still have a lot to learn on whats related to my POTS and what is just quirks lol but SInce I was little anytime I am exposed to the cold I get red welts and very,very itchy especially on my hands, feet and legs. Ive always wondered what caused this reaction. As soon as I get warm (warm as I get anyways since I am always cold) they go away. Thought I was the only one lol Ive always suspected some kinda of histamine reaction like mentioned above. Quote Link to comment Share on other sites More sharing options...
blueroses79 Posted June 19, 2013 Report Share Posted June 19, 2013 I also have the opposite: when my hands are hot--particularly if I'm holding a hot cup of coffee--they'll go *very* red (and puffy) and itch. I also assumed it was from pooling, but not totally sure there aren't histamines involved too. Quote Link to comment Share on other sites More sharing options...
cberau Posted June 20, 2013 Report Share Posted June 20, 2013 Mine get itchy either too hot or too cold. I also have Raynaud's and pompholyx (dyshydriotic eczema) from my palmar and plantar hyperhidrosis. It usually starts as very little red/brown vesicles, then the skin breaks down and just stays in all different forms of nasty for a while after a breakout. Cold in chicago definitely does it to me, and so does the very dry summer here in arizona (so I'm thinking maybe just dryness). The dryness doesn't make sense as I use lotion on my hands and feet, and it doesn't happen anywhere else. My worst breakout ever was in Dubai while I was working there, 115 degress F and 98% humidity, all three layers of skin on the soles of my feet broke down and fell off and I had bare muscle and ligaments showing. It was quite painful. Quote Link to comment Share on other sites More sharing options...
andybonse Posted June 20, 2013 Report Share Posted June 20, 2013 Every summer I get this, my hands start itching and its like little white lumps and then it turns into red rash on hands and then I start getting dry skin. Weird. Quote Link to comment Share on other sites More sharing options...
Chaos Posted June 21, 2013 Report Share Posted June 21, 2013 Here's a link to an interesting study discussing hand symptoms and their relationships to fibromyalgia and ME/CFS (which has a lot of the same autonomic symptoms as POTS). http://www.ncbi.nlm.nih.gov/pubmed/23691965#If you want an easier to read synopsis of the article and what it may mean this is a good linkhttp://www.cortjohnson.org/blog/2013/06/19/hands-up-a-key-to-the-fatigue-sleep-pain-in-fibromyalgia-found/ Quote Link to comment Share on other sites More sharing options...
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