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Fatigue Taking Toll


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My fatigue is getting worse and worse. I know this may sound silly but sometimes i wonder how much more tired a body can get. My anxiety goes up and I worry that my heart/body is just going to give out because my energy just keeps getting lower and lower. I know it's an irrational fear and I don't want to sound melodramatic and say it feels like you're slowly dying but I'm irrationally scared that each day that passes the less energy I have I don't know how I have energy to function at all.

I know I've been posting a lot lately but it's because I feel utterly exhausted, sick and isolated and I feel like the people on this forum are the only ones who understand or who have any answers. The specialist I see is EXTREMELY busy so I obviously can't bother her with every question and anxiety I have and I feel like no non-Dysautonomia people get what I'm going through.

I'm exhausted. I'm sad. I'm frustrated. I feel like I don't have much of my dignity left having to be sick and dependent on others. Every night I go to sleep hoping the next day I might be better. I'm not giving up and believe I can get better but right now I'm feeling kinda helpless. Does anyone ever bounce back from this all-encompassing debilitating fatigue?

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I'm sorry. :( I know what you are going through. When I was first diagnosed with POTS exhaustion was up there as one of my worst symptoms. Luckily, it is the only symptom that noticeably got better after I started taking Florinef and went on homebound schooling. Really I think the thing that helped the most was the homebound schooling. I really wish I could go back to school but getting up at 5:00 and walking up and down the halls for six hours was/ is just too much for me right now. Don't push yourself too hard. I also know what you mean about the specialist. I went to the "POTS specialist" of the east coast, and got no where because he was too busy to ever answer my calls or emails. I hope you start feeling better soon. :)

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I know what you're going through:(. I've been having horrible fatigue and I was convinced that nothing would ever help. I just started on concerta 3 days ago and for the first time in almost 2 years I have hope again that I may be able to function. I have more energy than I've had in a long time. No where near normal, but enough... So hang in there and keep trying, don't give up. I tried probably 6 other meds in the last 2 years that either did nothing or made me worse.

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