Is Clonidine Only For Hyperadrenergic Pots With Extremely High B/p?

[Amelia]

My question is I was recently at Mayo in Scottsdale and saw Dr. Goodman. He diagnosed me with hyperadrenergic pots. I don't tend to have b/p that go over 130/90. He did not mention this medication as an option. I have tried two other beta blockers propanolol and nadolol...had a bad itching response to a very low dose. He now wants me to try metoprolol. Also mentioned a drug ivabradine, has anyone had experience with this?

[issie]

I don't know about the last med you are asking about.

But, the title of your question is ----no. They use it for people who have normal type of high blood pressure too. I used it for HyperPOTS and it balanced out some wild swings. I stayed on it for a few months and then came off it. It is something I will keep in reserve for if I start to get those wild swings again. I don't know if it's used for those with other types of blood pressure issues. I could only use 1/4 of a pill ---I'm so sensitive to meds. But, it was something that took away those horrible surges for me. I just got tired of being well . . . ."tired". It made me lethargic. But, that was a welcomed thing with the horrible surges I was having and since coming off the med that horrible type of surge hasn't really come back and my bp is still being more level.

Issie

[comfortzone]

Curious which of your testing battery results gave you hyper pots dx - while carrying a normal blood pressure.... My orthostatic things tend toward hyperadrenergic - tachy baseline hr, losing blood pressure with prolonged standing - but I've complicated it all by age acquired hypertension & while losing weight is said to help things - in my case by b/p is still high. To treat it I'm on Inderal (Propranolol) twice a day which worked better than the other two or three b-blockers I tried..... I am also on Clonidine .3 per day. What that seems to do is keep the b/p in a realisitic range and it has eventually evened out the super labile nature of my b/p. It is still labile and that's probably from a sharp rise in catecholamines with standing .... At Mayo I've never had a diastolic under 100 ... at home it's a bit better. I also have to take dyazide for a diuretic to tamp down the b/p. If I have a 'low' day where b/p is 80/50's - those periods I stop the diuretic - they only last a couple days - weird - and then it goes high again. This losing wt. thing is over-rated.... I'm happy for the hope and up for the challenge - but a 15% loss in body weight has done virtually nothing for my vitals - it seems to strictly be this combination of meds that's helping things along.

[derekliz]

I am on Ivabradine.....see the recent post about it that Jangle started. I can try to answer any questions you may have. I love the medication

liz

[peregrine]

I'm now taking clonidine - 0.05mg twice daily (we tried 0.1mg twice daily and it was a bit too much, so this is a bit of finessing). My BP pretty much never goes over 140/85, except during my TTT when it was 170/100 at the max. It's been helping a lot - I'm a lot calmer, don't have adrenaline rushes over little things, and even have more energy (but am sleepy a lot and am much more lightheaded - BP has been down to 85/45 at the lowest). So not just for folks with super-high BP. My ANS neurologist said that my POTS was a mix of hyperPOTS and pooling, but I haven't had the standing/lying norepinephrine drawn, so it's a tentative guess.

[HyperPOTS8]

For most people, the BP lowering effect of clonidine is greater than for beta blockers.