DoozlyGirl Posted September 25, 2012 Report Share Posted September 25, 2012 Wanted to share that there is a new non-profit organization and website on Dysautonomia. Here is the link, if you want to check it out.http://dysautonomiainternational.org/index.php Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted September 25, 2012 Report Share Posted September 25, 2012 Notice the global interactive map where you can add your location - it shows patients with dysautonomia, as well as Doctors and other dysautonomia related people/organizations. Also, if you look under "events" there is going to be a dysautonomia awareness/fundraiser event in NYC next month. Dysautonomia International Kickoff Party It's very exciting! Quote Link to comment Share on other sites More sharing options...
Shiner Kitty Posted September 25, 2012 Report Share Posted September 25, 2012 Thank you for sharing this! Quote Link to comment Share on other sites More sharing options...
Kellysavedbygrace Posted September 26, 2012 Report Share Posted September 26, 2012 Funny, I stumbled on this site Sunday. Wonder how long it has been up. I was thinking of printing up the Dysautonomia brochure and taking it around to as many primary care docs as will listen and make it a personal campaign to spread the word in the Tampa Bay area of FL. Truth be told, I don't have the energy to do this now but maybe I could make it a really long term goal. Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted September 30, 2012 Report Share Posted September 30, 2012 http://www.dysautonomiainternational.org/map.phpI hope it's ok for me to bump this up for a minute. The map on this new site is really filling in and just wanted to make sure people saw this in case they wanted to add themselves. It's pretty interesting to look at. Quote Link to comment Share on other sites More sharing options...
leydengs Posted September 30, 2012 Report Share Posted September 30, 2012 These are great sites, thank you!!! Omg that map of where patients are located is really interesting! Quote Link to comment Share on other sites More sharing options...
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