Sheila1366 Posted August 29, 2012 Report Share Posted August 29, 2012 I have an appt. to see Dr. Raj. Not til Jan.24th but atleast it is made. Gonna have to save up for the 11 hour trip. I am hoping for some answers. So afraid I have PAF or Shy-Dragers. Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted August 30, 2012 Report Share Posted August 30, 2012 Good for you - I would love to go to Vandy. Hope you get some answers! Quote Link to comment Share on other sites More sharing options...
misstraci Posted August 30, 2012 Report Share Posted August 30, 2012 Awesome, good luck, even though its a few months away. Why do you think you may have PAF? I hope you don't, just curious. Quote Link to comment Share on other sites More sharing options...
Sheila1366 Posted August 31, 2012 Author Report Share Posted August 31, 2012 My family dr. mentioned the shy-dragers first. Have had terrible time with motility,bladder is having trouble emptying,heart issues,hypoglycemia,chronic head and neck pain,blood pressure drops when anything is in my stomach,trouble walking at times,vertigo,poor balance,hoarce almost all the time and my handwriting has been getting worse. My cardilogist thinks it could be PAF. I had a tilt table back in 2008 and was diagnosed with dysautonomia then but never found out the type I had cause couldn't afford more testing. Don't have the money now but have gotten so sick. There at times I lay in bed at night and just feel I am gonna stop breathing. I get so sick with gastroparesis and blood pressure problems, I just am so weak. Often my legs give out. Keep a wheelchair in the car all the time now.My family dr. told me that no one can be this unlucky without it all being linked somehow. He has a patient that has shy-dragers. It really scares me. Quote Link to comment Share on other sites More sharing options...
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