Inaccurate Medical Records And Ssi

[Darlene]

I applied for ssi a few months ago and was denied and am now currently working with a lawyer. I have gotten a few medical records, and decided to read them before giving them to my lawyer. Some records say my dysautonmia is fairly stable or it states i am doing well or i have mild dysautonomia. I think these records will go against me. I have never told my dr. that I was doing well, and what is mild autonomic dysfunction?

I was diagnosed with dysautonomia in 2005. I was bed ridden up until the time of diagnosis. I was put on meds, and this did help...to where I could go back home and take care of myself (was staying with my mom for a few moths because i was severely incompasitated). But I am still pretty sick.

I don't know how I could keep a job or work with my symptoms that vary day to day.

if I had mild autonomic dysfunction, wouldn't I be able to work?

How would the dr. know what I go through? He doesnt live with me.

Will I not get approved for ssi because of the medical records?

[HopeSprings]

I know. I hate to look at medical records because there are often inaccuracies that make me cringe. Based on my tilt test, my Dr. initially wrote mild orthostatic intolerance. My heartrate only went up to 108 during that brief ten minutes of my life, so I understand why he diagnosed me that way, but it goes up to 130-140 every morning getting out of bed and in the 120's during the day just being up and about. What I go through on a daily basis is anything but "mild." He knows now how bad it is, but what he wrote is in my records forever and these were part of the records that went to social security. I was able to get my neurologist (the diagnosing Dr). and my PCP to write letters for me. I'm really hoping that will help my case. Do you have a Dr. who would be willing to do this for you? Or I remember someone mentioning there are function forms Dr's can fill out which might be even more helpful.

[AllAboutPeace]

That is soo awful that we are at the mercy of the doctors notes like that. Even with 45min to 1 hr long appts with my docs, I find it almost impossible to try to convey to them how Pots affects my life. Plus sometimes I've just felt soo hopeless that I feel like I have to put on a smiling "I-will-get-better" face because I feel like if I say how bad it really is, I will end up in a meltdown leaving me in a heap of mush on the floor. I've since learned that isn't helpful when it comes to the reality of disability claims (although it is helpful in keeping denial alive ). Before my last specialist appt. I made notes about my current symptoms; a brief overview of my level of functioning and areas that I am restricted in, and my bp and hr for the past 6 weeks. I gave these notes to her and she was happy to add them to the file. I just figured at least she could refer to these because I knew there was no way I would be able to convey all of that info to her in an appt.

Would you be able to go back to these docs and go over in detail your current symptoms and limitations, so that they could update the file with that information? Hopefully, the lawyer will talk about the variability of symptoms; waxing and waning, etc, so that even if it appeared mild to the doc on that day, it is not necessarily accurate over time.