CarrieJessica Posted April 30, 2012 Report Share Posted April 30, 2012 I have IST and POTS combo but have noticed that IST isn't always listed on the dysautonomia sites. Why is that? Quote Link to comment Share on other sites More sharing options...
blinkofani Posted April 30, 2012 Report Share Posted April 30, 2012 this is totally just a guess...but maybe it's because the type of dysautonomia that involves heart rate is pots. with pots, typically the tachycardia that is experienced is regular, sinus tachycardia and it occurs on minor exersion or with postural changes. IST is different in that it happens at "innapropriate" times such as when just sitting still, which does not go along with typical pots. i'm guessing that IST is an electrical issue with the heart wheras POTS is a neurological/cardio disorder. Quote Link to comment Share on other sites More sharing options...
bellgirl Posted April 30, 2012 Report Share Posted April 30, 2012 It is probably because most of us have it . It goes along with the POTS, which is really just another name for dysautonomia, but there are different types of diseases that go along with it, some are diagnosed, others are not. Some have connective tissue disorders, autoimmune disorders, neurological disorders, cardiac disorders, GI disorders, and UT disorders. Quote Link to comment Share on other sites More sharing options...
blinkofani Posted April 30, 2012 Report Share Posted April 30, 2012 hmmm..i actually don't think IST technically goes with pots. i know that several people with pots can also have IST but diagnostically, they don't go together Quote Link to comment Share on other sites More sharing options...
bellgirl Posted April 30, 2012 Report Share Posted April 30, 2012 I could be wrong...Sorry, my intention was not to mislead...I have a Mitral Valve Prolapse, which probably causes mine, but erratic heart rate has been mentioned by many on this site, even without prolapse. I have tachycardia sitting and lying down, as well. I also have sleep apnea, which is only found in 30% of us with dysautonomia, so maybe I'm just assuming this, since it is something that I have, as well!! Can a moderator help us out here, please? Quote Link to comment Share on other sites More sharing options...
CarrieJessica Posted April 30, 2012 Author Report Share Posted April 30, 2012 Did alittle reading and the reason it is sometimes listed as Dysautonomia and sometimes not is because noone seems to agree on if it is a primary disorder of the sinus node, or whether because the sinus node is part of the autonomic nervous system and isn't working properly it falls under dysautonomia. Makes sense now that I have read up. In my experience IST and POTS are often hand in hand as they are in my case. My IST made it very hard to diagnose POTS because my heart rate is not always stable to begin with. POTS is not the only condition in Dysautonomia that involves the heart rate. Quote Link to comment Share on other sites More sharing options...
CarrieJessica Posted April 30, 2012 Author Report Share Posted April 30, 2012 I will be interested in what the EP cardiologist verses the Neurology crew have to say on IST. Quote Link to comment Share on other sites More sharing options...
tachyfor50years Posted April 30, 2012 Report Share Posted April 30, 2012 According to Dr. Grubb, POTS and Inappropriate Sinus Tachycardia are two clinically different entities but with significant overlap of symptoms.You can find some answers in this link:http://resources.metapress.com/pdf-preview.axd?code=d5454376431n1856&size=largest Quote Link to comment Share on other sites More sharing options...
RichGotsPots Posted April 30, 2012 Report Share Posted April 30, 2012 i will try to help to make it clear. These are two distinct tachy issues involving the sinus in our heart. You can easily have both issues. diagnostically IST is a rapid heart rate that occurs "inappropriately" in other words when it shouldn't be and it's constant. For example a person before IST may have had a resting heart rate of 60 BPM and now after it may be 90 or 100 BPM. POTS on the other had is any change greater than 30 bpm when going from supine to postural.Myself for example I have both. My normal resting HR went up to 80-90 and when I stand it is 130+ BPM. Generally speaking because of the increase of greater than 30 BPM they usually just call this POTS, it trumps the IST. When talking about treatments on this site they mention abbalation, which is an invasive procedure on the sinus node in the heart to slow it down and they mention it is used for both POTS and IST but some people have bad reactions. I've read that generally IST is treat differently. I believe in the absense of POTS some clinicians treat IST with a pacemaker or abbalation but not POTS. 'Not sure why they dont list IST as dysautonomia because I do believe the autonomic system regulates the sinus speed. It's within our fight or flight response system... Quote Link to comment Share on other sites More sharing options...
MontanaKimberly Posted May 1, 2012 Report Share Posted May 1, 2012 I have both IST and POTS. I take metoprolol 50mg twice a day, but I am looking for different options. I wasn't able to access the full text on that article- what meds do they recommend for someone who has both IST and POTS? Quote Link to comment Share on other sites More sharing options...
CarrieJessica Posted May 1, 2012 Author Report Share Posted May 1, 2012 Most places I have looked it is listed as dysautonomia, including talking with Dr Thompson office in Florida. It just wasn't listed on the Dinet main page. Here is a cardiology based article on IST and its relation to dysautonomia. http://cardiologydatabase.blogspot.com/2009/12/is-ist-form-of-dysautonomia.html Quote Link to comment Share on other sites More sharing options...
CarrieJessica Posted May 1, 2012 Author Report Share Posted May 1, 2012 MontanaKimberly, I am on the same med at the same dose. I have been slowly increasing because of being so tired but after 10 months I just don't feel or see (another Holter) any difference. EP wants to increase it some more and says we still have a ways to go before we might find my correct dosage. Not sure I like it. Quote Link to comment Share on other sites More sharing options...
issie Posted May 1, 2012 Report Share Posted May 1, 2012 Most places I have looked it is listed as dysautonomia, including talking with Dr Thompson office in Florida. It just wasn't listed on the Dinet main page. Here is a cardiology based article on IST and its relation to dysautonomia. http://cardiologydat...sautonomia.htmlThanks for the link. There is a question as to whether this is a part of POTS or a seperate issue. Most believe it is a seperate issue and something that could potentially be "fixed". Since my tacky and hr can happen with just movement and sitting or lying - some consider this connected to HyperPOTS - some believe though that it is IST. Will be interesting to see how doctors sort this out. Seems like a bunch of us have this.Issie Quote Link to comment Share on other sites More sharing options...
MontanaKimberly Posted May 1, 2012 Report Share Posted May 1, 2012 CarrieJessica- Have you ever tried a SSRI? My cardio said it will help regulate the autonomic nervous system and help reduce heart rate (he felt it was really important in IST patients). His next suggestion was Florineff. I just get so nervous with starting new meds. Quote Link to comment Share on other sites More sharing options...
CarrieJessica Posted May 1, 2012 Author Report Share Posted May 1, 2012 talked to my EP cardiologist's nurse over the phone (cannot believe they called me back in the same day, points for him) He said its not decided yet but in my docs opinion as well as most of his colleagues that if you have IST without dysautonomia like symptoms is is a sinus node issue and can be treated as such, if IST presents with other symptoms related to dysautonomia than it is more likely part of the autonomic dysfunction and even with the procedure symptoms are not as likely to be resolved. I have not been on an SSRI, I was on Wellbutrin for awhile but that was a doc who thought I had something else a few years ago. I see EP cardio again in the 11th and will add that to my list of questions. Quote Link to comment Share on other sites More sharing options...
MontanaKimberly Posted May 2, 2012 Report Share Posted May 2, 2012 That is so great to hear back! I always hate when they make you wait forever. Keep me posted how your appt goes. I'm shopping for a new cardio but when I find one I have a list of questions too I see my PCP next week and plan to ask to start LExapro and see if that will help bring my heart rate down. Quote Link to comment Share on other sites More sharing options...
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