puppylove Posted March 18, 2012 Report Share Posted March 18, 2012 I had been feeling so great for almost eight days in a row- not one symptom! I haven't changed a thing and today I'm back to feeling absolutely awful. I know POTS is a rollercoaster of good and bad but there has to be some reason, right? It's just so hard to believe that I could be symptom free for days and all the sudden get all my symptoms full force for no reason. Does anyone know of anything, or do you just accept not knowing? Quote Link to comment Share on other sites More sharing options...
jangle Posted March 18, 2012 Report Share Posted March 18, 2012 ENJOY WHAT YOU GET!!I can totally relate to your rollercoaster analogy, my goodness... for me it seems to be an hourly variance. Good some hours bad the others. Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted March 18, 2012 Report Share Posted March 18, 2012 Yeah mine is like that. over time the good outweighs the bad as I climb out of a bad patch. There is no reason unless its dietary. Suggests an autoimmune etiology because most autoimmune illnesses behave like this. Quote Link to comment Share on other sites More sharing options...
masumeh Posted March 18, 2012 Report Share Posted March 18, 2012 I think there is a "trigger" for most symptoms, though the matrix of factors is so complex it's difficult to decipher what is really causing any particular problem. For example, I could walk a long distance, but would get fatigued if a short activity involved raising my arms over my head. Something exciting is exhausting by default, so that was another trigger. My monthly mentral cycle, my quality of sleep, my stress level, and even the weather can influence my POTS symptoms. So it's just a big juggling act, and very difficult to pin down a solid "understanding" with operational application (like I can get control over all the factors in order to control, or at least predict, my symptoms). It took me many years to gradually realize all the coping mechanisms that worked and all the triggers that caused symptoms.I'd like to add, however, that this experience has taught me an important life lesson, which I may otherwise not have realized, namely to be thankful for temporary joys while they are there. Essentially, nothing lasts anyway. So, I believe that was an important lesson that fluctuations in my symptoms helped me to see and really practice. Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted March 18, 2012 Report Share Posted March 18, 2012 ive spent eight years searching and I am 100% certain that unless its something dietary that I am not aware of its just random for me. That being said I have developed ways to increase the likelihood of feeling well in certain circumstances. But there is definately no guarantees. Quote Link to comment Share on other sites More sharing options...
issie Posted March 18, 2012 Report Share Posted March 18, 2012 Yeah, same with me. The roller coaster ride continues - we're up - we're down - we're going round and round. Just hang on becasue the rides not over. Wheeeeeeee!Issie Quote Link to comment Share on other sites More sharing options...
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