delphicdragon Posted February 21, 2012 Report Share Posted February 21, 2012 Hey Everyone-I thought I'd share this with everyone on the site. For those who are new, I have Ehlers-Danlos which has caused POTS. I was diagnosed with POTS in 2007 after having seizures from low blood pressure. I currently take 5mg of Midodrine every 4 hours and am finally able to maintain a blood pressure of 110/70. Before the Midodrine, I used to get IV saline every week to try to keep my blood pressure up - I have since been able to stop the saline IVs.My doctors have recommended compression stockings for years and I could never put them on. My joints are so loose that trying to pull on regular nylons causes me to dislocate. I tried wearing knee socks but it didn't help enough. Even with the Midodrine I am still symptomatic during certain times of the month, sometimes requiring me to take time off work. (BP drops to 80/50, medicated, and the room spins, adrenaline surges etc).It was recommended to me by my occupational therapist to try wearing some sort of compression, so I went searching for something that I could put on without dislocating. A friend of mine, who is quite athletic, recommended Under-Armor brand of workout wear. They have a compression line of workout clothing. I thought this would never work, but I am so glad that I tried it!! I actually now wear compression capri pants ($40) and a compression long sleeve shirt ($30) under my clothes and have found I'm much less symptomatic. Walmart also sells Starter brand compression workout clothes in the men's section. I'm 5'8" and about 140 lbs and a small is a little tight, so that's an option too - and it's cheaper! ($12 for a shirt).Just thought I'd share something that has been helping me.Sara Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted February 21, 2012 Report Share Posted February 21, 2012 A positive story. Good stuff. I might check that out myself. Quote Link to comment Share on other sites More sharing options...
songcanary Posted February 22, 2012 Report Share Posted February 22, 2012 Thanks Sara, this is great info. I need to keep a running list of all the great suggestions on this site. My memory is so bad that I think I'll remember but I don't! Nice of you to post this. Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted February 22, 2012 Report Share Posted February 22, 2012 Im looking at an abdominal binder some time soon. Quote Link to comment Share on other sites More sharing options...
issie Posted February 22, 2012 Report Share Posted February 22, 2012 Here in the states is a store called Ross. You can get a neoprene waist cinch in the athletic section. That's the best abdominal binder I've found. You can swim in it too. It's not too uncomfortable and will work for guys and gals. Quote Link to comment Share on other sites More sharing options...
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