shoegal Posted February 20, 2012 Report Share Posted February 20, 2012 I'm struggling. Last few days I've had tingling/vibrating in my chest, not just my arms and legs and my back muscles are tight and painful. Last night the tingling was so bad in my chest, it hurt.My GI without tests or trying more than 2 laxatives has ditched me and referred me to a colorectal surgeon, why? he won't try a single thing for my severe chronic constipation (ie. no bowel movements without enemas, none)My Cardio won't even ring back although I was tachy all week and getting high pulses in the shower and blacking out. Again, he's done an event monitor and holter, no one discussed the event monitor results. He won't treat my very low BP (often 7?/4?) he wants endocrine too, who passed me back deeming me "fine". I have had inappropriate sinus tach since I was 19 at least, they dispute this, why I don't know, they said it's just anxiety.Friday they leave a message, there isn't anything more they can do for me.I can't take pain killers since it makes the constipation much more severe (and don't work so well). I don't get why others get help and here I am miserable.Only thing that helps a bit is 1mg of valium but no one will refill it. (although hey I just have anxiety right?) Quote Link to comment Share on other sites More sharing options...
Christy_D Posted February 20, 2012 Report Share Posted February 20, 2012 The only way we found help for my son was by seeing autonomic specialists. We had to travel far to get help, but that's what we did. Are any of your doctors autonomic specialists? If not, my recommendation would be to see an autonomic specialist. We have seen two neurologists and one gastroentrologist. Quote Link to comment Share on other sites More sharing options...
shoegal Posted February 20, 2012 Author Report Share Posted February 20, 2012 I'm waiting to see genetics, they say I may have something metabolic/mito and that is causing the autonomic dysfunction, it won't be any time soon though, not sure what to do until I get answers Quote Link to comment Share on other sites More sharing options...
corina Posted February 20, 2012 Report Share Posted February 20, 2012 i am so sorry you're having such a tough time shoegal. although i can't really help you i just thought i'd let you know that i feel for you. Quote Link to comment Share on other sites More sharing options...
blueskies Posted February 21, 2012 Report Share Posted February 21, 2012 Shoegal,It sounds like you need a new gastroentorologist. And as Chris said, an autonomic specialist. I have what sounds exactly like your bowel problem most of the time (say 98% of the time). Absolutely no bowel movements without very strong laxatives and those laxatives cause other problems. After years of dealing with this problem I have now found a gastroentorologist who understands quite a bit about POTS (he was recommended by my pots doc because of this) who is being very helpful and supportive in trying to help sort this problem out with me.I think you need to get better doctors. Quote Link to comment Share on other sites More sharing options...
gertie Posted February 21, 2012 Report Share Posted February 21, 2012 I had the same problem with constipation for 40 yrs or more. The only time I could go was if I drank warm prune juiceor took a laxative & that didn't always work. I finally went to a GI dr that knew about Dysautonomia. He told me totake Metamucil 2x daily. He said to take 1 tsp MM in 12 ozs of water (not 8oz). Also, eating fiber constipatesme more, the more fiber I added to my diet the worse I got. I know MM is fiber but it is different. It didn't helpimmediately but after a few days it started to help . I never expect to go daily but I'm happy with 3x a week. Quote Link to comment Share on other sites More sharing options...
shoegal Posted February 21, 2012 Author Report Share Posted February 21, 2012 The GI only tried miralax and lactulose, won't try anything else. Even on high doses I don't go without an enema. Embarrassing. It's been days again (despite 2-3 enemas a day) and I'm feeling pretty bad Quote Link to comment Share on other sites More sharing options...
julieph85 Posted February 21, 2012 Report Share Posted February 21, 2012 In my opinion, you need to get out to the mayo ASAP. I saw a wonderful GI doc there as I have your opposite problem. Quote Link to comment Share on other sites More sharing options...
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