IceSkate Posted January 13, 2012 Report Share Posted January 13, 2012 I was able to bump up my neurology appointment to 2 weeks.In summer, I had symptoms of POTS and my tilt table test in October revealed an increase of 60 bpm. From September through November, I could not taste and my entire body was numb. Since November, I have been 100% better. However, the numbness and tasting problem prompted me to make a neurology appointment.Does anyone have advice on how I should go about asking questions or describing what has happened to me. My general doctor and cardiologist did not think I had POTS.I don't know if the numbness and taste issue is from POTS. It could be something else or I could be completely fine since I feel fine. It's just hard to deal with doctors. The general doc thought it was just anxiety, but my tilt table said otherwise. Quote Link to comment Share on other sites More sharing options...
issie Posted January 13, 2012 Report Share Posted January 13, 2012 Taste issues can be directly linked to low zinc levels. Have you done a zinc challenge test to see if that's it? It's been years since I've looked into these things - so can't tell you how to do it. Quote Link to comment Share on other sites More sharing options...
yogini Posted January 13, 2012 Report Share Posted January 13, 2012 It sounds like your doctor and cardio don't have enough experience with POTS. IS this neurologist a POTS specialist? If not, he/she might not be helpful either. Quote Link to comment Share on other sites More sharing options...
IceSkate Posted January 13, 2012 Author Report Share Posted January 13, 2012 Unfortunately I could not find a neurologist at my hospital who knew about POTS. I still wanted to get checked out for the taste and numbness. One doctor I saw thought I might have more than one thing wrong (maybe POTS and something else). Quote Link to comment Share on other sites More sharing options...
bellgirl Posted January 13, 2012 Report Share Posted January 13, 2012 I have had a metallic taste in my mouth before, and trouble swallowing, numbness at times, but more nerve pain, tingling and heaviness than numbness. I believe all of these things can be related to dysautonomia (POTS). You definitely need a good neurologist, who knows something about dysautonomia. I'm not a doctor, but I thought anything over 30 bpm on a tilt table diagnosed you with POTS. You also need a doctor who specializes in Autonomic Disorders. Quote Link to comment Share on other sites More sharing options...
RichGotsPots Posted February 21, 2012 Report Share Posted February 21, 2012 Do you have sinus issues too? I went a whole year without smelling or tasting because of nasal polyps.. Quote Link to comment Share on other sites More sharing options...
kalamazoo Posted February 21, 2012 Report Share Posted February 21, 2012 Make sure you find one who listens. I write down the things I need to talk about and my symptoms. Always helps me and the doctor. Good luck! Quote Link to comment Share on other sites More sharing options...
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