micheller Posted November 17, 2011 Report Share Posted November 17, 2011 Since my main symptom is severe nausea, I don't eat a whole lot, maybe a few crackers a day and even that would make me feel sick for hours. My weight steadied around 103-105. Weird part is the last week or so I can't stop eating. I can't eat a lot at once but it's been all day, like someone flipped a switch. I'll have a sandwich, pretzels, noodles, celery, popcorn, crackers, every 2 hours...not at once of course. My weight is now at 115 which I needed to gain. I know in a few days I'll go back to not being able to eat for a few weeks. Is this a normal thing? I'm not complaining because I can eat and not feel so sick as long as I don't leave but I feel sick if I don't eat that often. It's like cravings completely take over. It's odd to me. Quote Link to comment Share on other sites More sharing options...
IDreamInColor Posted November 17, 2011 Report Share Posted November 17, 2011 Hi Michelle, I've had the same problem, my appetite has been nill. I've lost 50 pounds in the past year. I'm been drinking "Ensure" to try to get some decent nutrition. But on my nauseating days I barely eat at all. Quote Link to comment Share on other sites More sharing options...
micheller Posted November 17, 2011 Author Report Share Posted November 17, 2011 Maybe I'm making up for lost time? Lol I think I'll have to prepare for a crash soon. Quote Link to comment Share on other sites More sharing options...
mwise Posted November 17, 2011 Report Share Posted November 17, 2011 Enjoy eating while you can. I wax n wane with wanting to eat to not eating. My weight sits around 130 after losing over 30+lbs in 10 months prior to being diagnosed. I eat alot (6+) of small meals low fat/fat free with yogurt smoothies in-between. I can't drink ensure or boost due to the fat content, but buy yogurt smoothies and make my own smoothies using low-fat yogurt, skin milk & fresh fruits. I have even substituted Gator Aide or power drinks for skin milk in the smoothies. Taste pretty delicious. I just wish we could all fix our digestive systems. It has been awhile since I ate fast foods. Lol I am eating healthier than ever. Quote Link to comment Share on other sites More sharing options...
GingerA Posted November 17, 2011 Report Share Posted November 17, 2011 I have the same problem sometimes. I feel RAVENOUS for days and if I don't eat right then I get sick. I think it is just one of the joys of dysautonomia. Quote Link to comment Share on other sites More sharing options...
Katybug Posted November 21, 2011 Report Share Posted November 21, 2011 I was just thinking this today....I'm on an eating streak. I'll have a flare of my GI symptoms and will not be able to eat for weeks at a time...I eventually don't even feel hungry during these episodes. Then, just like you said, something flips the switch and the GI symptoms settle and I become ravenous. I can't get enough and eat all day like I'm grazing. It's really weird. Quote Link to comment Share on other sites More sharing options...
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