PattiL Posted January 19, 2005 Report Share Posted January 19, 2005 My daughter and I used to post on NDRF (we posted as Chris85). Chrissy hasn't had a lot of difficulties, she's 19 yrs. old with POTS, but the weather does seem like an ongoing problem. We live in the Cleveland area, which lately has been around 10 degrees. Last week we were in the 60's in the afternoon and then it went down into the 20's. When it does that I can understand why she doesn't feel too great, but lately the weather's been so cold but she goes out to her car without a coat, has to turn on the a/c and open a window. She says she can't really feel the cold at all (she explains it as kindof being numb to it) and just feels really terrible. She hasn't mentioned her heart rate going crazy during these times. Could she be somewhat dehydrated? She's absolutely terrible about getting enough fluid in. I don't know what to do for her. We keep our house at a cool temp. for her (low 60's), she has a ceiling fan in her bedroom and bath and yet she's still so hot--especially in the morning when she's getting ready for school. She is currently only on florinef. We were to have an appt. with Dr. Grubb in a couple weeks, but they wrote to cancel the appt. I'm wondering if we should call an get in to see an associate, or just wait until he is better. Any suggestions on why this is happening and what I can do to help her would be appreciated. I dread the summer, as does she, she is so much worse then! Thanks so much! Patti Quote Link to comment Share on other sites More sharing options...
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