Kitsakatsa Posted August 1, 2011 Report Share Posted August 1, 2011 So anyway, one of my struggles with POTS is that no one ever remembers the name let alone what it is. Even my own Mom will be demanding and when I remind her of why I can't do something she'll say that she always forgets that I have POTS. Nice. Then to make matters worse, she'll say every once in awhile that someone asked her what I have and that she told them that she can't remember and can't really describe it but will report that she told them it's a brain problem. Nice. I thought- if she doesn't know what I have and she's been to Mayo with me then this probably flies over the heads of every one of my friends and family. I wanted to do a POTS blog. Then, I signed up to run a relay race which is virtually impossible for a potsy. I remember though, that someone posted one year that they had ran a 5k and every time things got tough I thought of that story and kept that as my compass and guide for where I wanted to be. I wanted to do a blog about my journey to the relay. So, the two have come together as an educational about POTS and what a potsy would have to do to drop over 100 pounds, go from couch potato to runner. I have a little less than 1 year until the race and I will have to run a total of about 10 miles in 3 segments. How am I going to do this?! I don't even know. The blog is "new one burn to shine"www.newoneburntoshine.wordpress.comI would appreciate your support. subscribe or just drop me a comment. I hope that I can get the word out about pots place, pots, dysautonomia and then maybe achieve something a little amazing next June with everyone's help. Kitsa Quote Link to comment Share on other sites More sharing options...
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