ramakentesh Posted June 3, 2011 Report Share Posted June 3, 2011 http://ajpheart.physiology.org/content/early/2011/05/23/ajpheart.00018.2011.abstractThey call it LFP now - sounds better than Low flow POTS. Antioxidants appear to do the trick. Quote Link to comment Share on other sites More sharing options...
Lenna Posted June 3, 2011 Report Share Posted June 3, 2011 I don't want anyone to think that this is a "cure". My son has been taking 500 mg. of ascorbic acid daily for over a year now. That's the same thing as ascorbate, right? Maybe it's helping him, but not in any way that's obvious. Once again, this has not been Dan's magic bullet. Quote Link to comment Share on other sites More sharing options...
MamaTrain Posted June 3, 2011 Report Share Posted June 3, 2011 The article was a little "sciencey" for me so I tried to read between the lines and guess that it was Vitamin C they were talking about. Is that right? I also dont know much about low flow POTS. I have heard of other types like developmental POTS, Hyper POTS, partial POTS and what not but not low flow. What does that mean? I lean towards hyper POTS as I put out alot of norepi so does this apply to me?KC Quote Link to comment Share on other sites More sharing options...
Sarah4444 Posted June 3, 2011 Report Share Posted June 3, 2011 That's really interesting. A little while ago Julie posted some info about Dr. Pall's theories re NO. I tried to read it and he recommends a bunch of supplements but where I live I don't have access to a person who can help me make informed and thoughtful medical decisions about supplements. However he also says he thinks Ascorbic Acid could help with NO abnormalities, so I figured taking Vit C couldn't hurt...so about three weeks ago I started taking 1000 mg slow release Vit C twice a day. It may have been a total coincidence, but after about 10 days I had the best weekend I have had for a while. Then I started skipping the Vit C and again it may have been coincidence (I have a lot of symptom variability), but I have been having a crummy week. Anyhow, my point is that I am going to start being careful about taking it again and see what happens. Quote Link to comment Share on other sites More sharing options...
toddm1960 Posted June 3, 2011 Report Share Posted June 3, 2011 Julian Stewart is light years ahead of any other dysautonomia researcher, for new members that haven't visited his web site it's http://www.nymc.edu/fhp/centers/syncope/index.htmIt will give you a little back ground information on LFP, and his other POTS divisions.I have been taking 3 grams of vitamin C for a long while I can't say it's changed my orthostatic hypertension, but I'm sure it's at least helping with the increased oxidative stress. Great post rama. Quote Link to comment Share on other sites More sharing options...
sue1234 Posted June 3, 2011 Report Share Posted June 3, 2011 I brought vitamin C up last year. Along with it's role in collagen synthesis, it is also involved in preventing histamine release(or breaking it down, or something like that). Along with understanding what vitamin C does in the body, I was reading about the degradation of vitamin C by intestinal bacteria. If under these circumstances in some people due to their unique pH and bacterial make-up, it is possible that we can consume vitamin C, but it is broken down by the bacteria, leaving no ascorbic acid to be used by the body. This is all in the attached article. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC180761/?page=8I really think by us all hashing it out on this forum, we will get it narrowed down! Quote Link to comment Share on other sites More sharing options...
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