Godsgal Posted May 9, 2011 Report Share Posted May 9, 2011 So I started on these new meds.....40 mg pepcid and 10 mg. of claritin twice a day. Everything was going great the first day until BOOM! Big reaction....itching, breathing crazy, hot face, tingling on my whole face, throat, mouth, hands, arms. I took an extra claritin and benadryl to make it go away.Last night I was itching again like crazy, tingling mouth, the numbness started spreading across my face. I took 50 mg. of benadryl and went to bed.Well it's hit me early today and I have it now. The tingling, pins/needles, numbness, whatever is in my hands, fingers, mostly my face, throat, lips. What in the world?!? I get scared half to death like I'm having a stroke but I'm also itching and hot so I think not. But when I get this, the numbness and tingling lasts for hours and hours. In fact, I had it most of the day after I had the crazy episode the other night.does this ring a bell with anyone???? I'm thinking these new meds are not pushing my buttons very well. PLUS, I have a sinus infection. Let me say one thing that doesn't make it seem like the mast cell stuff is when I stretch my muscles it gets worse.....if I stretch my neck or arm the tingling/numbness spreads to my throat and face. If I put my head over to the left to stretch my neck, the muscles are so tight in my neck that it pulls my mouth open. And it exacerbates the tingling/numbness. I took some benadryl and the itching is gone but the tingling persists. The joints in my jaw are very sore. This started a few days ago. Surely the pepcid and claritin wouldn't do this. What could be making me have this numbness, pins/needles in my face, throat, hands, back??? I had a spine MRI a couple months ago and a nerve conduction study too. Plus the autonomic test a couple months ago. PRAYING, PRAYING, PRAYING this will look up Quote Link to comment Share on other sites More sharing options...
lieze Posted May 9, 2011 Report Share Posted May 9, 2011 I felt bad when taking Claritin.Did not feel right at all until it was out of my system. Quote Link to comment Share on other sites More sharing options...
Godsgal Posted May 9, 2011 Author Report Share Posted May 9, 2011 let me say one thing that doesn't make it seem like the mast cell stuff is when I stretch my muscles it gets worse.....if I stretch my neck or arm the tingling/numbness spreads to my throat and face Quote Link to comment Share on other sites More sharing options...
juliegee Posted May 9, 2011 Report Share Posted May 9, 2011 Jared-That sounds scary. I find it hard to believe that the claritin & pepcid would cause these reactions too- but the timing is suspect. Dr. Afrin is the one who suggested this regimen, right? From my understanding, he's very open to E-Mailing or otherwise communicating with his patients. I would contact him ASAP and share your experience. The tingling pins and needle feeling, along with itching, is consistent with an allergic reaction for me. Maybe you introduced your new med regimen too quickly without titrating up and giving your body time to adapt to the new meds- just a thought. The sinus infection could be worsening things too... Try to rest and relax. As you know stress worsens these things. I've gone months with a numb left arm, chin, etc. and made it through That being said, head to the ER pronto if you have compromised breathing. Let us know what you find out. I'm sending prayers and good thoughts your way. Hugs-Julie Quote Link to comment Share on other sites More sharing options...
Sarah4444 Posted May 9, 2011 Report Share Posted May 9, 2011 I have also had episodes of tingling and numbness - particularly on my cheeks, lower arms and hands. I don't know why exactly, but it has improved. I think that Nalcrom is a pretty important med for me. Did you get to see Dr. Afrin? Quote Link to comment Share on other sites More sharing options...
sue1234 Posted May 9, 2011 Report Share Posted May 9, 2011 I had low calcium after my thyroid surgery, and it caused pins/needles in my hands, lower arms and face. If you tolerate calcium, take one or two and see if it is that. Low calcium would cause tight muscles, too. Quote Link to comment Share on other sites More sharing options...
Godsgal Posted May 10, 2011 Author Report Share Posted May 10, 2011 I am set to see Dr. Afrin May 23rd. The tingling is nuts! It has lasted for days now. It feels like a strong band is wrapped around my neck...not so comforting. Quote Link to comment Share on other sites More sharing options...
juliegee Posted May 10, 2011 Report Share Posted May 10, 2011 Please call Dr. Afrin's office just to be safe. I'm sure that he will have a suggestion for you.Julie Quote Link to comment Share on other sites More sharing options...
Godsgal Posted May 10, 2011 Author Report Share Posted May 10, 2011 Please call Dr. Afrin's office just to be safe. I'm sure that he will have a suggestion for you.JulieI emailed him last night and he contacted my Dr. this morning with quite the lengthy email. I tell you, he has impressed me so very much. I can't wait to meet him in person. Plus he gave specific instructions regarding my bone marrow biopsy to be done. Great doctor so far. I am set up for Thursday to get it done. God be with me!!! I'm a little nervous. More for the results than I am the actual procedure. But I'm having faith it will come back okay. Quote Link to comment Share on other sites More sharing options...
juliegee Posted May 10, 2011 Report Share Posted May 10, 2011 Jared-How wonderful that he is so involved BEFORE you are even his patient. (Your docs needed some guidance as I recall- weren't they hesitant to put you on any meds???) And, you've come up with a great solution re. the BMB- instructions from the specialist! Let's hope they follow them I'm sending prayers and good thoughts that all goes well on Thursday. let us know. Julie Quote Link to comment Share on other sites More sharing options...
tinkerbella Posted May 11, 2011 Report Share Posted May 11, 2011 Do you happen to live in New England? I can't stop itching. I am on all the meds...and it wakes me up in the middle of the night. The numbness of the face I have it and have had it forever. It feels like a stroke. I have had MRI's and will tell my PC tomorrow as now I get tremors. My neuro thought I was getting a variant of a migraine. The pollen is the worst ever here. I don't know if this helps you any, but I hope so. I have also been getting numbness more and more frequently in my arms and legs and hands and feet. I wish you the best ~Bellamia ~ the other itchy, tingly, numb mess Quote Link to comment Share on other sites More sharing options...
tinkerbella Posted May 11, 2011 Report Share Posted May 11, 2011 I also meant to give you a big hug and say when in doubt check it out!It drives me nuts!!!!I don't like that you say it is going near your throat. I would go to the ER if mine did that.We can't fool around with anything, our bodies are different. Please call your doc or go to the ER.Let us know how you are.I just reread and see you are having a bone marrow test Thursday. My prayers are with you.xxxxxx'sBellamia ~ Quote Link to comment Share on other sites More sharing options...
Godsgal Posted May 12, 2011 Author Report Share Posted May 12, 2011 Do you happen to live in New England? I can't stop itching. I am on all the meds...and it wakes me up in the middle of the night. The numbness of the face I have it and have had it forever. It feels like a stroke. I have had MRI's and will tell my PC tomorrow as now I get tremors. My neuro thought I was getting a variant of a migraine. The pollen is the worst ever here. I don't know if this helps you any, but I hope so. I have also been getting numbness more and more frequently in my arms and legs and hands and feet. I wish you the best ~Bellamia ~ the other itchy, tingly, numb mess I don't live in New England.....South Florida. It's crazy hot here! You definitely don't want to be here!!! It's comforting to hear of other's numbness and it's nice to meet another numb, tingly, itchy mess! It does make me nervous. My posture is TERRIBLE. And I'm constantly hunched over. I'm sure that doesn't help me. I'm pretty sure it's related to something muscular or nerves because it gets worse if I stretch it. Quote Link to comment Share on other sites More sharing options...
tinkerbella Posted May 12, 2011 Report Share Posted May 12, 2011 I'm being tested for neuro muscular disease in July. for a second time...I wish you the best!hugs,Bellamia ~ Quote Link to comment Share on other sites More sharing options...
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