HopeSprings Posted May 18, 2011 Author Report Share Posted May 18, 2011 Oh sorry, Issie that's frustrating. I know I overreact to everything too. I usually get the lowest possible dose (or pediatric dose when possible) and then take that pill and quarter it (when safe to do so). Keep us posted. Quote Link to comment Share on other sites More sharing options...
sue1234 Posted May 18, 2011 Report Share Posted May 18, 2011 Same here--I overreact to everything at a normal dose. Quote Link to comment Share on other sites More sharing options...
issie Posted May 19, 2011 Report Share Posted May 19, 2011 About decided to not take the Taurine. It gives me hot flashes, feel fuzzy headed and generally unwell. Cut it down to a very small amount and still same results. The only thing I can figure is my body doesn't break down protein properly. (Had similiar issues with every type of amino I've tried.) I think taking Vit. C and Vit. E seems to agree with me. Also have found Olive Leaf to be very beneficial - it helps to regulate NET function. Take a few other supplements - but these pertain to POTS the most - I think.Experiemnt Over! Quote Link to comment Share on other sites More sharing options...
lgtaylor100 Posted May 19, 2011 Report Share Posted May 19, 2011 I always feel dehydrated too but when I was recently in the hospital they said I wasn't dehydrated and didn't give me a saline IV. They said my electrolytes were fine. Does anyone know about this? If your electrolytes test normal does that mean you are not dehydrated and if so why do I feel as if I am/ Quote Link to comment Share on other sites More sharing options...
Neshema1 Posted May 26, 2011 Report Share Posted May 26, 2011 Yes, my daxor BVA was at vandy. My red blood volume was something like 35%.,..severe. My CBC is even looking bad these days. My NE also is wacky high. Thanks for the info abt the daxor site. I need to check that out. If I didn't mention before, if u have severe hypovolemia, u might want to get your albumin checked. Quote Link to comment Share on other sites More sharing options...
Annaliese Posted November 13, 2011 Report Share Posted November 13, 2011 I found this free webinar series on the renin-angiotensin system very useful in explaining how blood volume and BP are maintained by the body. http://drnajeeblectures.com I watched it all and there was no mention of blood pressure or volume sensors in the legs..... Quote Link to comment Share on other sites More sharing options...
Annaliese Posted November 13, 2011 Report Share Posted November 13, 2011 Todd, you brought up the Q re regional versus overall hypervolemia. I had wondered this too. After watching that seminar series i mentioned above, it appears (at least to me) that the body prioritises blood flow to vital organs. So if you had neuropathy and your overall blood volume was normal for someone your size, standing would pool blood in your legs decreasing bp to vital organs. These organs sense a problem and activate the renin angiotensin system. So, my interpretation was, it's regional. What do others think? Quote Link to comment Share on other sites More sharing options...
ACB Posted November 13, 2011 Report Share Posted November 13, 2011 I've been wondering about blood volume since my POTS diagnosis in Feb '11. I have been instructed to salt and water load, but had never had a blood volume test. A couple weeks ago, I went to Mayo Rochester for testing, because my local docs treatment plans were not working.At Mayo, I did a 24-hr urine collection. At my doc and nurse consults up there, I was shown the results of that collection, which indicated that my output was good (meaning that I was drinking enough water), and that my sodium levels were normal. However, they said that they wanted to see my sodium levels at the upper end of normal, because that's what they recommend for POTS pts. I was instructed to increase my sodium intake and to have another 24-hr urine collection in 3-4 wks.Reading in this thread that Mayo has access to Daxor equipment, I don't understand why a "real" blood volume test wasn't run. Any thoughts on this? Quote Link to comment Share on other sites More sharing options...
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