juliegee Posted March 14, 2011 Report Share Posted March 14, 2011 http://online.wsj.com/article/SB10001424052748704008704575639193973468402.html?mod=ITP_pageone_0 Quote Link to comment Share on other sites More sharing options...
sandymbme Posted March 14, 2011 Report Share Posted March 14, 2011 Interesting article, Julie. I am not a CFS patient, but my PCP did some viral testing on me late last year. I cam back with positive results for Epstein-Barr and HHV-6, and elevated mycoplasma pneumoniae. But even my Doc acknowledged that they don't really know what that means!Sandy Quote Link to comment Share on other sites More sharing options...
Noreen Posted March 14, 2011 Report Share Posted March 14, 2011 Very interesting article.Thanks for posting the link Quote Link to comment Share on other sites More sharing options...
rach73 Posted March 14, 2011 Report Share Posted March 14, 2011 very interesting thank you.It seems from the article that the US medical profession - some of them - are quite like the British medical system believing that ME / CFS is a psychogenic / psychiatric illness. I wonder if any of these Dr's have ever been called to a coroners inquests where a patient has died from this psychogenic / psychiatric illness?Rach Quote Link to comment Share on other sites More sharing options...
juliegee Posted March 15, 2011 Author Report Share Posted March 15, 2011 Lots of documentation on early death with CFS... http://www.michaelmaes.net/PDF/CARDIO-CFS-11-8-2010.pdfJennifer wrote a thread earlier entitled "Do we get old?" I hated to post this stuff Scary. Quote Link to comment Share on other sites More sharing options...
Chaos Posted March 15, 2011 Report Share Posted March 15, 2011 You're right Julie, it IS scary. That's an amazing difference in life expectancy. Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted March 15, 2011 Report Share Posted March 15, 2011 Good I hope the pressure stays on them to figure this thing out. It's been too many years with no answers. Quote Link to comment Share on other sites More sharing options...
juliegee Posted March 15, 2011 Author Report Share Posted March 15, 2011 Even scarier when you realize that dysautonomia & CFS are almost synonomous. Dr. Rowe found that 90% + of CFS patients have OI.... Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted March 15, 2011 Report Share Posted March 15, 2011 Does this make anyone else wonder if "POTS" - main criteria being orthostatic intolerance (which 90% of "CFS" people have) is really CFS? Is this all really one illness? Quote Link to comment Share on other sites More sharing options...
firewatcher Posted March 15, 2011 Report Share Posted March 15, 2011 (edited) Eventually, I think that POTS will be seen more like diabetes. There is a certain dysfunction, the pancreas in diabetes, who knows what in POTS, that has multiple causes: autoimmune or genetic in type I diabetes and weight induced in type II. The treatments are similar for both, but while one can be controlled through diet and exercise, the other cannot. BOTH types lead to heart and kidney failure eventually and it is usually dependent on the tightness of symptom control.With POTS and CFS, I believe that we will find that there is a post-viral and a genetic (or epigenetic) type, but that both will have end organ damage if poorly controlled. We simply don't have the long-term information or studies for POTS and CFS that we have for diabetes. Unfortunately, WE are the guinea pigs and there are very few of us who feel like volunteering! On Research Match.org, there is a very small pool (40 people) of POTS patients. Edited March 15, 2011 by firewatcher Quote Link to comment Share on other sites More sharing options...
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