lieze Posted February 15, 2011 Report Share Posted February 15, 2011 I have felt sluggish and weak.I have wondered about just a little caffeine to get me going-is this a bad idea? Quote Link to comment Share on other sites More sharing options...
Sallysblooms Posted February 15, 2011 Report Share Posted February 15, 2011 I eat healthfully most of the time, but I love to drink a little Coca Cola and have some Chocolate. I eat no gluten so it is important to also have some FUN. Everyone is different. It bothers some people to have even a little caffeine. Doesn't bother me at all. I don't drink coffee though, so I don't get that much. Quote Link to comment Share on other sites More sharing options...
iheartcats Posted February 15, 2011 Report Share Posted February 15, 2011 I have a latte everyday. I went for one month without it and about went insane. But, I tried and was worse in the morning. I'm one of the POTS folk who gets a boost from Caffeine in the AM! Quote Link to comment Share on other sites More sharing options...
zaks27 Posted February 15, 2011 Report Share Posted February 15, 2011 I HAVE to drink one cup of coffee a day. Without it I feel lousy and really feel it helps the pre-syncope, lightheadedness and fatigue! Quote Link to comment Share on other sites More sharing options...
Elfie Posted February 16, 2011 Report Share Posted February 16, 2011 Caffeine and I get along-- but part of that is that I don't get an elevated heart rate from it on my beta blocker like I did pre-bb. A small amount (1 or 2 cups of coffee) actually helps with the lightheadedness and the energy. More than that and I get symptoms. Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted February 16, 2011 Report Share Posted February 16, 2011 Coffee helps me a lot in the morning. It does bring up my heartrate, which I don't like, but it helps a lot with brain fog and just the extreme exhaustion and confusion I feel when I first wake up. Maybe try 1/2 a cup and see how you do. I do 1/2 regular 1/2 decaf and mix them together. Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted February 17, 2011 Report Share Posted February 17, 2011 Caffeine is one of the standard treatments to help bring up BP, especially when it's naturally lower in the mornings. The only reason it could be dangerous is if one ingested too much or if you have a history of being very sensitive to stimulants. It's a good question for your doctor.Nina Quote Link to comment Share on other sites More sharing options...
zaks27 Posted February 19, 2011 Report Share Posted February 19, 2011 I just remembered--the nurse when I had my TiltTT gave me a cup of coffee while I was laying there (shaking like a leaf) after the test. It helped tremendously--even though it was lousy coffee;=) My impression was they gave this to all TTT patients post testing. Quote Link to comment Share on other sites More sharing options...
Tanzanite Posted February 19, 2011 Report Share Posted February 19, 2011 My POTS specialist actually told me to take 500mg of caffeine a day (divided over the day). It works for me. Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted February 19, 2011 Report Share Posted February 19, 2011 Caffeine is good as long as you monitor that you are not becoming tolerant to it. The way to avoid this is to come off it every once in awhile and then go back to it again. You can try tea, coffee or take the tablets and cut them.I treat caffeine as a medication and use caution.It does help me raise my bp. Quote Link to comment Share on other sites More sharing options...
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