hayley Posted November 25, 2004 Report Share Posted November 25, 2004 hi everyone one.please send me good luck as im going into hospital on monday for a week to see if theres a cause for my pots.im terrified but hopefully the end is near.anyway take care everyone.hayley Quote Link to comment Share on other sites More sharing options...
Eillyre Posted November 25, 2004 Report Share Posted November 25, 2004 Dear Hayley, Hope things go well for your visit. Still in the midst of trying to figure out my POTS case, I can sympathize with your fear and frustration, but am glad to hear that you are not giving up. I'll be praying for peace of mind for you and wisdom for the doctors. Happy Thanksgiving and let us know how things go.With love, Angela Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted November 25, 2004 Report Share Posted November 25, 2004 Good luck Hayley! Maybe they'll find something easily treatable for you. Nina Quote Link to comment Share on other sites More sharing options...
Ernie Posted November 25, 2004 Report Share Posted November 25, 2004 Good luck Hayley,I will pray for you so that the doctors find a good treatment for you.Keep us posted.Ernie Quote Link to comment Share on other sites More sharing options...
goldicedance Posted November 25, 2004 Report Share Posted November 25, 2004 Good luck, Hayley. Will hold you in my prayers next week. I do have a suggestion, particularly if you are in a telemetry unit where they monitor your heart rate 24/7--try to walk around so that they can capture your heart rate. That was advice that I got from my cardiologist when I was hospitalized. Don't forget to ask for SALT! Quote Link to comment Share on other sites More sharing options...
hayley Posted November 25, 2004 Author Report Share Posted November 25, 2004 thanks for rpelying and your kind words.i have another question.if the doctors ask about my symptoms im going to write them all down and hand them the piece of paper do you think thats the best way of doing it? Quote Link to comment Share on other sites More sharing options...
briarrose Posted November 25, 2004 Report Share Posted November 25, 2004 Hayley Good luck Definitely write down all of your symptoms over the weekend, try not to miss any and give them the list. Make sure you tell them what exacerbates your symptoms, such as exertion, standing, laying, what ever might effect you.Suggestion, you might also want to print out some information to give them on POTS and Dysautonomia. You may be working with some doctor's that know nothing or very little about this illness. (what does everyone else think here?) Quote Link to comment Share on other sites More sharing options...
Nicole's Mom Posted November 25, 2004 Report Share Posted November 25, 2004 Hayley,Good luck for a great outcome to your hospital stay. I will keep you in my thoughts and prayers. Ditto- big time- to what Briarrose suggested.Best Wishes,Beverly Quote Link to comment Share on other sites More sharing options...
hayley Posted November 25, 2004 Author Report Share Posted November 25, 2004 im actually seeing a doctor who specialises in pots hes seen me before.but i want to be prepared with my list. Quote Link to comment Share on other sites More sharing options...
Guest veryblue Posted November 25, 2004 Report Share Posted November 25, 2004 good luck...hope they find something treatable for you...who knows maybe they will find something wrong in you and it ends up somethig being wrong in many POTS patients and many of us can be cured...you might be making history...keep us posted! Quote Link to comment Share on other sites More sharing options...
corina Posted November 25, 2004 Report Share Posted November 25, 2004 Hi Hayley,best wishes and I hope that things work out well for you. Corina Quote Link to comment Share on other sites More sharing options...
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