Jump to content

Dysautonomia News Fall 2004


Recommended Posts

Hi everyone!

The latest edition of Dysautonomia News has been published. I'd like to thank Pam Reichers and Judith Pettibone for their help in creating this newsletter.

I'd also like to thank Nina Wilde, Stacey Yount, S. Churchill, Marsha, Kathleen Blose and Emma Nicholson for contributing to this newsletter.

We do have an area of our newsletter set aside for patients' writings called "The Patient's Voice". It is a place where patients and caregivers can write about experiences relating to dysautonomia - both positive and negative. It is a place to share medical experiences, suggestions, short stories and poetry. Send contributions to: staff@dinet.org

Here is the newsletter: http://www.dinet.org/Fall2004/fall04news1.htm

Sincerely,

Michelle Sawicki, President

DINET

PO Box 55

Brooklyn, MI 49230

Link to comment
Share on other sites

HI

My name is susan. My daughter Abby 11 has recently been diagnosed with POTS. We still have some further work up but it looks like she has POTS. I have been on the internet researching POTS and found this site. I would like to talk to mothers of childen with POTS and children/adults that have had the syndrome.

It has been tough this month Abby out of school and me out of work. Talking to others that have POTS, who they have seen for specialists and what their treatment and prognosis is will help

Thank you

Sue

Massachusetts

Link to comment
Share on other sites

Abby

I'm sorry, almost missed this all together because sometimes I don't go back to topics that I've already read.

Welcome aboard by the way.

You need to start your own Post to get a good response. I'm more than happy to talk to you but none of my kids have been diagnosed with POTS and right now they only show signs of some dysautonomia. I would be happy to answer anything I might know about so you can email me personally or post here.

steph

Link to comment
Share on other sites

I moved this post from the "Information and Announcements" page so that it would hopefully get some replys. As Steph said, it will probably get more replys if you post it starting a new topic.

Best,

Michelle

Link to comment
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

 Share

×
×
  • Create New...