ethansmom Posted November 9, 2004 Report Share Posted November 9, 2004 I saw a new doctor last week, he is an infectious disease & autoimmune specialist. I was really pleased with my visit and just wanted to share. His specialty is CFS and fibromyalgia- he evaluated me for both and while I do not have fibro, he definitely seems to think I have CFS. He was also familiar with POTS and its link to chronic fatigue. He explained to me that many doctors (which we all know) send us away with a diagnosis of CFS without clear answers about WHY we have it. He believes that POTS is secondary in many cases to an underlying problem, and that many doctors are pumping us full of medications to help control our symptoms, while the cause is never identified in many cases (although some of us do know our trigger, there are times when that knowledge doesn't get us very far). Because I am a classic case, he is hopeful that he can identify some things that may help us figure out what caused this, and what we can do about it. He started off with loads of bloodwork that has NEVER been done on me before, despite repeated requests to many doctors over the last few years. He is testing for Lyme disease, and doing genetic/DNA testing that my insurance forked out $2K for . He is doing very involved testing on my immune system...to try to put the pieces together. I go back Dec. 7th for the results. He says he will keep pressing on until he has answers for me.The fact that I am pregnant may alter the results a bit, so if everything comes back normal he will retest next year. He explained to me that I am destined to be symptom free during pregnancy because of my specific case of POTS/CFS, the production of hormones allows these viral flare ups that I have to lay dormant. I am looking forward to the end of my morning sickness so I can have a few months of normalcy again I am cautiously optimistic, but hopeful that I will walk away with more answers than I have had thus far. Just wanted to share... Quote Link to comment Share on other sites More sharing options...
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.