Feeling Worse

[fighting4health]

I am feeling horrible again. I slept 12 hours yesterday and almost did it again today. I'm missing out on things I'm supposed to be attending. I feel like I've hit rock bottom again. I'm trying to fight back so I made an exercise chart and looked up some old recipes that suit my diet. Hopefully with a little effort I'll start to break through this and feel better.

I am so glad I've got this site. Knowing you all go through the same things is the best support ever.

I'm going in for my first MRI in 2 days. I've got the usual feelings we get for a new test. I really don't expect anything to be found because 99.9% of the 10 billion tests I've done have been normal, but it would be nice if they found something that could be treated or at least have a name put to it. It would be most awesome if they found something that doctors have heard of!

Previous to my official diagnosis I, like most, had doctors suggest that I get treated for anxiety. If treatment for anxiety can wipe out all my symptoms sign me up!! I'll be the first in line for hard core inpatient treatment!

[firewatcher]

My sympathies and complete understanding. I've gotten to the point of almost firing all but the absolutely necessary doctors. I don't want anymore tests anyway; they all show up either perfectly normal or completely screwed up and the doctor just says "Gee, that's weird...no clue!" If it takes 12 hours of sleep a day to be as functional as you can be, do it. You know your body best and what you need. I would also welcome "commitment" if it would cure me: just think, three meals a day, no dishes, no responsibility, no cleaning and hours of "therapy!"

YOU know it isn't in your head! I know people with anxiety disorder that don't have these extreme physical symptoms. Sit on the bottom for a while and gather your strength, vent away...I'll turn up the fan!

[potsgirl]

I can totally relate. I can't stand being up for too long, so I end up heading to bed around 5 pm, where I'll reading until about 6:30 and turn out the light. Usually I'm asleep by 7, and I get up the next morning around 6 am. Of course, I don't sleep solidly for that long..I get about 5 hours of 'good' sleep, and then toss and turn the rest of the night. And this is on sleep meds. Ugh. What we all wouldn't give for a solid 9 or 10 hours!

I've been feeling more down lately, too, so I certainly am commiserating with you. I hope you're feeling better soon. This disease seems to have it's ups and downs, so hopefully an 'up' is right around the corner!

Cheers,

Jana

[mountain girl]

I can totally relate and glad you felt you could vent. If you are anything like me when I feel bad it is hard to think that tomorrow may be better. I understand and wish I could wave my "magic wand" for all of us to have a cure and feel better. So sorry you are feeling worse and hope it will pass for you to have some good hours or good days. I feel like I spend half my life in bed now too.Blessings and hugs to you!

[Mrs. Burschman]

I've been feeling worse since September, so I understand. It bites. Bleah.

[sandymbme]

My symptoms have had a major turn for the worse since May, and I totally relate to feeling frustrated and helpless. I too, would love a simple, recognizable diagnoses of something easily treated. Thank God for the refuge of these message boards, so we have at least one place where we are understood!

Sandy

[fighting4health]

My MRI was fun (like being in a space ship). The techs were super nice and even gave me a blanket. Unfortunately once I got home my temp had dropped to 94.1 and I've had no appetite and have been seriously nauseous for hours. I've got a date in 2 hours and have to figure out what food or meds will make me functional enough to make it. Thanks all for your support. I hope I get an upswing soon.