Mike & Willows Having A Bad Time Just Now.

[willows]

Sorry I haven't been around much over the past few weeks but Mike ( my son ) and I are having a bit of a bad time just lately , in fact last week was our all time high as far as having attacks was concerned.

On Tuesday I had an attack most of the day , but felt fine by Wednesday morning ( or so I thought) so I went into town and did some christmas shopping at a very good store, the queue was very long ..........to long and by the time I had reached the half way mark I was starting to feel a bit 'funny' OMG with nothing to hang on to except my fellow people in the queue I was looking around frantically for help when the lady beside me must have seem I was having problems because the next thing I knew was she was shouting at the staff at the cash desk to get help ...............ooooooooooooops 'the floor came up to visit me '

So, after being picked up , brushed down and parked at the nearest coffee shop ( about 10 years from the shops door) I was given strong coffee and two security guards to sit with me until Mike and his mate had escaped from college to come and collect me from my enforced escorts the security guards were adamant that I was not leaving there sides until my son had arrived , which was fine by me , but oh , boy did the local shoppers stare )

The out come of my escapade in the store is that now if I go to do shopping in the store I can have a personal shopper every time and I can get my goods taken from me and cashed up in front of all my fellow shoppers whilst I sit down by the cash desk on a chair .............well I dont think they want the whole of the store brought to a standstill again some how !

So after managing to get home in one piece I was sitting feeling extremely tired on the settee watching some silly kids program , minding my own business ............bang ..........my heart kicked in or should I say kicked out again and once again I was confined to bed with a mountain of drugs and strict instructions to lay still , rest and forget everything and anything that needed to be done .............some hope with just a few days to go before christmas.

Thursday arrived and I got up very gingerly at around midday , feeling fine I did a little bit here and there and nothing , heart fine, sweats fine , head fine ......fine all over

At around 6:30 pm I said to Mike lets go and go some of the shopping I've been trying to do all week and have failed to do , so off we both went , both feeling absolutley FINE

Went to Morrisons a huge supermarket and had around 25 items to get on my christmas food shop list , got all these and made my way to the checkout when Mike out of the blue said ' I feel funny'................O........................M....................G he looked really red and his eyes sort of kept dipping upwards . panic stations here !!!!!!!!!!!!

Alarm bells ringing in my head now as I grabbed the nearest shop assistant and got her to pull Mike over to a large chair by the window , go for a first aider and then get some OJ which she had a sachet of medication to mix into for him .

So Mike was sitting down with now three shop people around him and I was standing at the checkouts trying to sort my groceries into bags.............when..................a little voice in front of me said ' excuse me , but are you OK , you've just gone really white and your lips are all blue in colour , do you need a chair ?'

YES, I'd kicked off as well and as the last words left her lips I started to feel my world falling around me ............OMG .

So , 10 minutes later and you could hear the two ambulance sirens from a distance as they came hurtling towards Morrisons , I was taken to one with two paramedics and Mike was taken to the other with two as well , his blood pressure has in the heavens and mine in my boots, 3/4 hour later and having explained that we just needed medication ( which I always carry now ) and we where at last given the OK to go as long as I felt safe and felt I was not going to 'kick off again'

Since then I've had another attack and so has Mike , it appears if we are together that one sets the other one off , now I know families like to share but this is taking it a bit to far dont you think .

Another little problem that has arisen since I last came on is that I'm now going to be tested for other conditions including Addison's disease , I have Palm creases that I've shown so many doctors for years and until now no one has taken any notice of me , but my new POTS man did , as well as all the dark brown pigmentation's in the creases of my body , at the base of my spine and tons under my arm pits of all places. I also have some strange goings in to do with my glucose tolerance , as we have diabetes in the family this doesn't surprise me one bit .

This new man , who at the time I thought was a waste of space has picked up more than another doctor has ever done in just one 30 minute visit , so maybe I did judge him a bit fast .

With so much going on and so many attacks over the past few days it seems that this christmas is going to be an interesting one of nothing else.

Oh, yes, Mark caught the bug that has been going around the UK for weeks and was so ill , if he wasn't locked in the bathroom every 10 minutes wishing he'd never eaten shouting out 'dont even say the word food ever again' then he was on his knees with his head down the loo shouting other words ( not to be repearted) luckily Mike and I kept out of his way for 72 hours , mainly in my big bedroom watching sky, on our computers or watching DvDs in between one or the other of us falling asleep or at time both of us out sound !!!!!

I may not be able to get back to you again before christmas as the tiredness I have at this time is just overwhelming and I'm really having problems just staying awake for about 4-5 hours a day , not the best of months for either Mike or me .

So, to all my friends and to everyone past , present and all you new members of the pots community may I wish you and your family a very happy christmas and a pots free one if possible.

I hope you all get what you have asked father christmas for and that 2009 will be a year of less pain , less passing out , more days of fun and laughter and above all ................tons of love to you all.

Amelia, Mark and Mike in Plymouth Devon UK

Happy christmas each and everyone of you .

[firewatcher]

WOW! I hope you are feeling better now. I will add you to my prayer list! I hope the doctors actually discover something endocrine, that at least can be fixed and is a well know malady. Both of you rest and try to enjoy a quiet, restful holiday. Perhaps Father Christmas will take Gilbert back to his workshop this year and you'll be rid of that little lumpy troll forever! Keep us posted.

Jennifer

[corina]

warm wishes to the three of you! try not to share everything (i know that will be difficult as you are a very generous person!). i hope you all will be back on your feet very soon and have the best christmas ever.

with love

corina

[juliegee]

I'm so sorry things are rough now. I'm sending lots of love and prayers across the pond.

Hugs-

Julie

[Tessa]

I am so sorry. I hope you are feeling better right now.

Amelia, Mark and Mike, my best wishes for you too and a healthy 2009!

Sending possitive thougths and prayers your way.

Take care,

Love,

Tessa

[Heiferly]

I hope you'll both get to feeling better enough to look back on all this and laugh about it!

Sending hopes of happy holidays and better health in 2009,

Heif.

[willows]

Thanks your your messages.

Well, I almost got through christmas ................after opening my presents with a plastic bucket beside me and then at around 2 pm in the afternoon being sent to bed as I couldnt stay awake, was white as a sheet and in some considerable pain .....boxing day arrived and went without me taking part in it at all and then the next day arrived with me in so much pain I didnt know what to do with myself again , so hence the local doctor was called .

I've had a constant headache in the right side of my face ....ear, nose, all my teeth and the rest of my face for 10 days solid and its got so bad that all I want to do is be sick , no pain killers seem to touch it and I'm having hearing loss as well .

I'm having my hearing checked on the 2nd Januaray2009 ( few days time ) but whats more important is that I'm also being checked for Addison's disease as they have just discovered that I have huge brown skin discolourations under each arm and at the base of my spine as well as small patches of pure white skin that has lost its colour on my face ...........well you know what they say ' it never rains but it pours'

This christmas for me was absolutley astounding as my husband had been for around 6 months saying that he had no spare cash ????????????

I was beginning to think he was up to something strange ??????

And on christmas day I discovered what his money had all gone on .........ME .....OMG my crazy husband had only gone and bought just about everything I'd put on my wish list and if you'd have seen my wish list you'd have thought he had well and truly lost the plot

In all my married years I have never really asked for much at christmas , I've always been content to watch as my son and my husband open the gifts and enjoy seeing thier faces when they see how I've been able to keep such surprises from them .....but this year the table was turned .

I wont tell you what I got , but lets say this , if I never get another gift of either of them my whole life I'll still have had the best Christmases , birthdays, anniversaries , Easter , mothers day , and every other day you can think of .........ever.

I should be cross because spending so much money on me does make me feel so guilty , but all they both kept saying was that I do so much for them and the people around me that it was time the balance was made equal, so I have just got to except that for them its the same as what I've been doing for years ....watching thier faces and seeing the total utter shock at what I've bought them ..............well they really succeeded with me big time !!!!!!!!

ALSO...............I called Corina after my opening of presents and emptying my bucket ( in that order ) and she was feeling quite good, her sons where just cooking breakfast and she was enjoying the morning with them both .

I did manage to get a parcel to her and the boys earlier this month and was pleased that it had arrived and she was able to open it on christmas eve , since then I've discovered that Corina's favourite colour is pink ............and I've just bought her without knowing this , a pink hat to keep the cold of her head come the very bad weather , so hopefully this will be winging its way to you soon as well .

Well , all I can say now is 'Happy New Year to you all ' , may you have a great new years eve and be on your feet upright afterwards , without any form of hangover .

Bye for now Ami , Mark and Mike xxxxxxxxxxx