momofsara Posted December 19, 2008 Report Share Posted December 19, 2008 On Tuesday, I took Sara to have her new port flushed for the first time. We were both a bit nervous(as you always are with a new doc). We didnt know if he would be one of the disbelievers or not. He is a hemotologist/oncologist and we were a little afraid there would be lots of questions as to why she had the port, since she doesnt have cancer. However, we were very pleasantly surprised. All the office staff were super nice, and the doctor was a gem. He was very understanding of the dysautonomia and said it was something not much was known about.. Also asked if we were aware of the Dysautonomia Clinic in Birmingham. We told him we were, and her PCP is checking in to see if they might help her and if Medicaid will pay. The new doc wants to have some specific blood work done because hes concerned with all her infection history. Wants to see if there is a defect in her blood chemistry somehow. But we were very pleased overall with the doctor and the staff. The nurse who flushed the port was so sweet. Anyways, since we have all had such a problem with doctors, just thought I'd put in a good word for this great one Sara has now. Best to all and hope everyone here has a very symptom-free holiday and a blessed Christmas....Susan Quote Link to comment Share on other sites More sharing options...
pat57 Posted December 19, 2008 Report Share Posted December 19, 2008 Glad to hear it! Quote Link to comment Share on other sites More sharing options...
ajw4790 Posted December 19, 2008 Report Share Posted December 19, 2008 Yea! I hope they continue to be helpful and understanding! Maybe they can even be a good resource for other helpful drs/treatment! I wish there was more of those! Quote Link to comment Share on other sites More sharing options...
Michelle F. Posted December 19, 2008 Report Share Posted December 19, 2008 I'm glad Susan. Michelle F. Quote Link to comment Share on other sites More sharing options...
Ernie Posted December 19, 2008 Report Share Posted December 19, 2008 Hi,That's so nice that you found a comprehensive doctor and a good staff. Quote Link to comment Share on other sites More sharing options...
flop Posted December 19, 2008 Report Share Posted December 19, 2008 Thanks for sharing, it is great to hear that Sara's new doctor is so nice and, although not in his own field, sounds like he wants to help.Flop Quote Link to comment Share on other sites More sharing options...
Megan Posted December 19, 2008 Report Share Posted December 19, 2008 That's always good to hear!Meg Quote Link to comment Share on other sites More sharing options...
Maxine Posted December 19, 2008 Report Share Posted December 19, 2008 WOW-----------wonderful!I like these kind of stories. We need this encouragement-----thanks for sharing!Maxine :0) Quote Link to comment Share on other sites More sharing options...
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