Nausea Vomiiting Surges Paralysis & More

[dizzygirl]

as i'm going thru a yuck bout of adrenaline surges~I had had them some what under control!~ (meaning i was not being awaken every single night with them!) just having daytime ones..when either i would stand too long or go into a store (the lighting trigger them for me along with the standing before i get a powerthingy)

I have had 24/7 severe nausea.. and since wednesday i've had vomitting... which is kinda a violent vomitting... along with diarrhea... i dont have the flu..but i know my doc will be like well maybe its the flu...ERRR NOPE!

I had just nausea and vommitting on wednesday.. thursday... my body kept getting really weak.. and my muscles would go fuzzy.. and i'd have to go lay down...should have been a red flag that i was going to go into surgy meltdown mode!

so i wake up at like 4am in a horrible paralysis spell and i can not move.. and my muscle felt all electrictrified...and i have horrible pains in my guts and in my stomach... I really hate how i physically feel during these.. i cant truly put how crappy it is in to words...

the paralysis spells really s&ck.. i've seen local dr/s here at home.. to try and treat these and they brush me off 100%...So i wont even atempt anymore to see local specialist.. b/c they treat me like crap and dont take me seriously.. so until i can afford to travel to see some one..i gues i just deal with them...along with everything else...

to the other with paralysisi spells on here do you have bladder issues????? after spells??? IE--- constantly feeling like your going to wet you pants?

having alot of joint issues hurting and pain.. and recently my larger joints.. (ankles knees)..tailbone) have been slipping out of place and over exstending.. and gosh darn it that hurts.. last wk i was walking down the hall and my knee and ankle in the same leg just went out..OUCH!

my small joint have been doing it too toes and some fingers... so it use to be just when i was coming out of paralysis that my joints would flexable..b/c the muscle tone would be gone.. but now it happening when i'm not in one and that just freaks me the heck out....

anyways I'm just tired of dealing with so many symtpoms and most of the time i can deal with it.. but when you get so many systems all going nuts at the same time it can really run ya down...(i mena more then the every day dealing with mutliple sysytems)

I guess it does bumm me out b/c i'm not sure what is triggering this... and I have a hard enough time dealing with my normal day to day stuff... let alone dealing with the extremes too...

and these surges...GRRRRRRRRRRRRRR OOOh i dont like em.... and i dont want to upp clonidine again b/c this stuff while it does help the side effects stink.. but i put up with them b/c.. id rather deal with nast y med affect then deal with 7 day a wk surges... but here i am daily surges and daily side effects...

so anyways i'm just complaining today! thanks for reading

[Heiferly]

Disclaimer: This may be TMI for some folks. It's all about my urinary habits with my paralysis, LOL. So skip this one if you want.

I get paralysis too. It's hard to say about feeling like I'm going to wet myself after the paralysis because I know a lot of times I do, but some of those times I know why. Some of the times I end up in the ED and they pretty much always put a catheter in and when they take that out then I feel like I'm constantly going to pee myself for the next day or two. But I'm trying to think of the other times that it happens . . . I know that while the paralysis is just wearing off I get a VERY strong urge to pee but then if I have a bedpan it will be the tiniest trickle not the huge gush I thought was coming. And then after I'm done I'll feel like I still have to go but nothing is there. But that wears off pretty soon once I'm fully up and at it, I think.

I feel for you when you say you've given up on getting your local docs to take you seriously. A couple of my docs do, but I saw the turning point when my neuro decided I was a total nutcase the end of this summer. And I wonder more and more if my other docs are beginning to think that at least the paralysis is more in my head than anything, and that maybe I'm a bit crazy. It gets to a point where all their tests come back negative so it MUST be all in my head. Sigh.

[dizzygirl]

Yeah see that is the thing.. i've had alot of test results come back abnormal....(mri's ct scans..eeg,s..ekg's, breathing tests,lab work,sleep studys..and the list just goes on...) with no concrete answers as to why! i so need a dr.. that will put the puzzle pieces together.. and like i said before its not going to happen here at home...

I see that you have low potassium... have you been checked out for periodic paralysis?

[Ernie]

Hi Linda,

I have that problem when I an in a bad adrenaline attack. Can you take pedialyte or gastrolyte? This helps me a lot. Otherwise I have to go to the ER to get IVs, like 5-6L.

[pat57]

sounds horrible dizzy. Don't forget about Dr. Qi near Quakertown, how far is that for you?

[Heiferly]

They said they have ruled out periodic paralysis but I'm still not perfectly clear on whether the test they did is 100% conclusive. First we decided that trying to test potassium during an episode was pointless because there is so much research showing that that is inconclusive, and I'm already hypokalemic much of the time anyway. So I said I wanted them to rule out HypoKPP some other way, considering I fit the symptoms so well. Well they did an EMG. But then I found out that that would most likely be negative between episodes even if I did have HypoKPP so I told them I wasn't happy with them using that to rule it out because it was meaningless. (They did it when I wasn't having paralysis because it's so hard to "catch" an episode.) So I found in a journal article about the SET/LET type of EMG, and asked that they do that. I got that done, but they said it was a test they about never did there so how can I be so sure they did it properly?? And is it 100% definitive for ruling out periodic paralysis if done between episodes?? I can't find the answer to that anywhere, though the neuro-musc specialist said it is. Medicaid will NOT pay for genetic testing. So I just gave up. The docs all thought I was crazy pursuing such a "zebra" diagnosis anyway and the neuro-muscular doctor told me NO WAY I would have HypoKPP at the same time I had the syncope going on . . . I brought him a journal article of a case study to prove him wrong.

It's still in the back of my mind, probably always will be because I can't get the genetic test and my grandma had "MS" but back then the diagnosis was based on guesswork so it could've been periodic paralysis.

[Ernie]

Hi Linda,

There is a form of Periodic Paralysis without drop of K+ during an attack!

[Heiferly]

Ernie, do you have a form of periodic paralysis, or is it something different that causes your paralysis? You had genetic testing, right? Did insurance pay for it?

[Ernie]

Hi,

I was diagnosed with a form of Periodic Paralysis. The genetic testing was paid by the government.

[ramakentesh]

Oh yeah - I hate POTS but I REALLY hate those adrenal surges! They really suck! ive just come out of a boute of them for about three weeks. Still a bit stomach-knotty even now in the mornings when I stand. Progress is ofcourse painfully slow.

I had a chance to talk to my specialist at length about the adrenal surges. Despite what I had read my specialist was adament that all POTS patients get this symptom, not just those with faulty NE reuptake.

he explained that when the excessive norepinephrine levels start constricting the veins in the brain, eyes and particularly the carotid arteries to such a level that we get dizzy, out of it and faint, our bodies will sometimes shoot of a load of epinephrine/adrenalin to restore blood pressure and flow to the brain. it will probably make us less dizzy, but ofcourse you feel aweful. He has studied panic disorders from a cardiological perspective and was quite adament that the two scenarios are VERY different.

Anyway, if ytou have peripheral dysautonomia - that is excessive venous pooling, your body will have an excessive sympathetic response to standing which will eventually result in either low BP and fainting or fainting caused by norepinephrine excess due to vasoconstriction of the carotid arteries. This can and will result in an adrenal surge.

Similarly with impaired NET reuptake, you just take the pooling out of the situation - you still habe an excessive norepinephrine response to standing that results in vasoconstriction of the carotid arteries and ultimately fainting. The adrenal surge is designed to counter that in your body but it feels awful.

Norepinephrine is implicated in alertness so when we are dizzy we are also very alert - hypervigilant - wired and tired.

He suggested that unfortunately the adrenal surges are a sign that your in a bad spell. Straight, calm dizziness means your on the improve.

What I did to0 get out of the spell was to take beta blockers and avoid much walking or standing. Once the beta blockers seemed to have calmed down the adrenals somewhat, i am wheening off them and then beginning to walk around more and will hit the licorice root to combat the dizziness.