ramakentesh Posted November 14, 2008 Report Share Posted November 14, 2008 In a major POT hole at the moment. All my meds are making me worse rather than better - im on ergotamine at the moment and today it basically did nothing. Ive been drinking water like a fish, but im thirstier than ever. I cant eat much at the moment - infact i dont feel like eating at all! Autonomic surges for four days but they seemed to have settled for now - just got the dizziness and a fatigue like you wouldnt believe now and i felt so dizzy today that i was even feeling like i was going to pass out lying flat in bed for hours...In the past the only thing that has worked for me is some licorice lollies and just trying to ignore it away but at the moment i cant. Ive been off work all week and the way things are going i cant see myself even being able to manage the train ride in at the moment. Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted November 14, 2008 Report Share Posted November 14, 2008 Salt and fluids usually does a good deal for me. But not always. I try not to lie down too mcuh since that can only make things worse.Hope you feel better soon. Quote Link to comment Share on other sites More sharing options...
pat57 Posted November 14, 2008 Report Share Posted November 14, 2008 a good nights rest, compression stockings and light meals, never-the-less it has to run its course Quote Link to comment Share on other sites More sharing options...
Ernie Posted November 14, 2008 Report Share Posted November 14, 2008 Hi,What about going to the ER for rehydration! Quote Link to comment Share on other sites More sharing options...
iheartcats Posted November 14, 2008 Report Share Posted November 14, 2008 I find Gatorade or Sport Drinks help more than water because of the electrolytes and salt. Also, while sometimes I understand you can't help but lie down, try to move around a bit so you don't get too deconditioned if you can stand it. And eating is essential. I know how hard it is to eat if you don't feel like it, but you need food. When I skip meals I notice I get very, very dizzy. Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted November 15, 2008 Author Report Share Posted November 15, 2008 thanks for the advice guys - today i stopped taking the ergotamine and i feel better. My appetite has come back so as soon as I ate and drank i felt heaps better. meds that cause nausea and diaherra are bad news for POTS patients!! Took two beta blockers this morning to get over the adrenal surge. Quote Link to comment Share on other sites More sharing options...
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