ken870 Posted September 14, 2008 Report Share Posted September 14, 2008 yes i was wondering if anybody else has severe pooling in stomach feet and legs also does your stomach swell from blood pooling. Quote Link to comment Share on other sites More sharing options...
sheba Posted September 14, 2008 Report Share Posted September 14, 2008 My stomach swells big time feels like im carying a baby. Not sure what can be done about this. Quote Link to comment Share on other sites More sharing options...
ken870 Posted September 14, 2008 Author Report Share Posted September 14, 2008 does anybody know how to treat the blood pooling in stomachand do you have anybody that has knots that come up on their heads. Quote Link to comment Share on other sites More sharing options...
Ernie Posted September 15, 2008 Report Share Posted September 15, 2008 Hi,Compression hose and midrodine. Quote Link to comment Share on other sites More sharing options...
ken870 Posted September 17, 2008 Author Report Share Posted September 17, 2008 hopfulcase2,what do you take for your stomach swelling. Quote Link to comment Share on other sites More sharing options...
valliali Posted September 17, 2008 Report Share Posted September 17, 2008 this is a good question. i get horrible stomach swelling, very uncomfortable pressure, and feel a very strong pulse in my abdomen. do you get that too? do you know for sure it's from blood pooling? Quote Link to comment Share on other sites More sharing options...
ken870 Posted September 18, 2008 Author Report Share Posted September 18, 2008 yes i have been told it comes from blood pooling what have you been told about your stomach and what drugs are you taking for it. Quote Link to comment Share on other sites More sharing options...
Sunfish Posted September 18, 2008 Report Share Posted September 18, 2008 i get significant stomach/ abdominal distention but it's not so much from blood pooling as it is from intestinal & stomach bloating/ distention. just something to consider that might be what's going on in part or in full for some of you... melissa Quote Link to comment Share on other sites More sharing options...
corina Posted September 18, 2008 Report Share Posted September 18, 2008 i hadn't heard about pooling in stomach before, so i don't know anything about it. what i did notice is that my stomach is "growing"during the day (which i can't explain as i eat several times a day and just small portions). since i am wearing an abdominal compression thing (sorry brainfog can't think of how it's called right now) i've noticed not only that i have more standing and sitting time, my stomach stays "flat" as well. ah the little delights in life hope this helped a bit,corina (sunfish, great to see your name pop up. you're in my thoughts always) Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted September 18, 2008 Report Share Posted September 18, 2008 I have to manage life with blood pooling. Legs and Abdomen.I use compression garments. I eat smaller frequent snacks. Meals make me sleepy.Most are aware of the problem in the legs. The "other" pooling is referred to as splanchnic pooling.best regards,tearose Quote Link to comment Share on other sites More sharing options...
momofsara Posted September 18, 2008 Report Share Posted September 18, 2008 When Sara had her TTT, part of the result was listed as "severe splanchnic pooling'. The only treatment was suggested to be compression shorts......... Susan Quote Link to comment Share on other sites More sharing options...
ken870 Posted September 18, 2008 Author Report Share Posted September 18, 2008 where can you buy compression shorts. Quote Link to comment Share on other sites More sharing options...
Tommyhoney Posted September 18, 2008 Report Share Posted September 18, 2008 where can you buy compression shorts.Hi there,You could probably try some "bike shorts" from a sporting goods store to start. Quote Link to comment Share on other sites More sharing options...
momofsara Posted September 18, 2008 Report Share Posted September 18, 2008 we ordered Sara's compression shorts from a medical supply store...... Susan Quote Link to comment Share on other sites More sharing options...
ken870 Posted September 19, 2008 Author Report Share Posted September 19, 2008 i will be having a ttt done monday how do they tell if your blood is pooling by the tilt table test. Quote Link to comment Share on other sites More sharing options...
sheba Posted September 20, 2008 Report Share Posted September 20, 2008 I get most of the pooling after I eat and about a week or two befor my cycle. I think I will go even smaller on my meals and the sugar really makes me pool along with rice and bread. Never tried the stomach garment will try those. Sometimes I try stroking or massaging my stomach for a couple of minutes not to firm it kind of work for me. Quote Link to comment Share on other sites More sharing options...
ken870 Posted September 21, 2008 Author Report Share Posted September 21, 2008 again how do they tell on the tilt table test that you have blood pooling in stomach and legs. Quote Link to comment Share on other sites More sharing options...
Ernie Posted September 21, 2008 Report Share Posted September 21, 2008 Hi,If your blood vessels dilate when you are upright. Quote Link to comment Share on other sites More sharing options...
Rachel Posted September 21, 2008 Report Share Posted September 21, 2008 Changes in heart rate and/or blood pressure may indicate blood pooling. Your legs and feet may turn a mottled purple color from pooling. I've also heard of some people having their calves and ankles measured before and during the ttt to show how much swelling is caused by the pooling.If you want to see a picture of pooling, you can check out this link: http://www.nymc.edu/fhp/centers/syncope/ch...intolerance.htmI hope your ttt goes well on Monday.Rachel Quote Link to comment Share on other sites More sharing options...
ken870 Posted September 22, 2008 Author Report Share Posted September 22, 2008 my ttt went bad today and there was one thing they did not understand they said my heart rate lying down flat on my back was 125 and they stood me up it went to 200. Quote Link to comment Share on other sites More sharing options...
Rachel Posted September 22, 2008 Report Share Posted September 22, 2008 What was it about the test that they didn't understand? Did they not understand why your heart rate went up to 200?A heart rate jumping from 125 while lying down to 200 upon being tilted upright is consitent with the definition of POTS. Quote Link to comment Share on other sites More sharing options...
ken870 Posted September 22, 2008 Author Report Share Posted September 22, 2008 they told me with pots your heart rate is usually not up as high as mine was lying down and they said my blood pressure went up when they tilted me to a standing position. Quote Link to comment Share on other sites More sharing options...
Rachel Posted September 23, 2008 Report Share Posted September 23, 2008 It may not be typical for someone with POTS to have a very high heart rate while lying down, but I certainly don't think it is out of the realm of possibilities. My resting hr used to always be right around 120. For about a year my diagnosis included IST. IST stands for Inappropriate Sinus Tachycardia, and it basically means that your hr is too high even while resting.A common misconception (even among doctors) is that blood pressure must go down to have POTS, but that is not true. Some people have a rise in bp. According to Dr. Grubb, a leading autonomic specialist, the definition of POTS is "the presence of orthostatic intolerance symptoms associated with a heart rate increase of 30 beats/minute (or a rate that exceeds 120 beats/minute) within the first 10 minutes of standing or upright tilt.... It should be noted that many patients with orthostatic intolerance will not have orthostatic hypotension (a fall of >20/10 mmHg); rather there may be only a small drop in blood pressure, and no change or even a small increase in blood pressure upon assuming an upright posture." http://www.medscape.com/viewarticle/522421_printDid you receive a diagnosis after your ttt?Rachel Quote Link to comment Share on other sites More sharing options...
ken870 Posted September 23, 2008 Author Report Share Posted September 23, 2008 they said it was probable pots and another disease of my heart that cause my heart rate to stay high or even higher upon standing also they said my ekg showed a right bundle branch block. Quote Link to comment Share on other sites More sharing options...
ajw4790 Posted September 23, 2008 Report Share Posted September 23, 2008 Hi,I have started to notice more blood pooling for myself in legs and abdomen. I feel that between the blood pooling, water retention, and gastric issues my abdomen size changes frequently and that without all this going on, I wouldn't like others have said look pregnant or a lot more overweight than I am.I have not used compression garmets etc. I am just trying to strengthen muscles etc. to help the pooling.It was good you were able to get a TTT and that it sounds like you were symptomatic and that they test demonstrated that. Hopefully they will take the results and find the right diagnoses. It sounds like they have a good idea, but MAY be confused on BP going up rather than down. I echo Rachel, in that it can be either. If the drs. seem to not fully understand dysautonomia and the variety of symptoms etc., then maybe take them in some research that shows that BP can raise with TTT.Hopefully you get more answers soon and some relief of symptoms! Quote Link to comment Share on other sites More sharing options...
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